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Orthostatic Tremor

Orthostatic Tremor

Information, News, Research, and Discussion

September is Orthostatic Tremor Awareness Month!

Make a difference and become part of the cure for this rare and disabling disease. You are the key to creating awareness and research for Orthostatic Tremor.
Tools and resources to help build awareness of OT.
Read about how the OT Awareness month began.
PRESS RELEASE / Letter to your local newspaper - September is the very first Orthostatic Tremor (OT) Awareness Month and you can help get the word out! The more everyone learns about OT, the better: for those who have it, for the clinicians who treat it and for those of us who are raising money for OT research to cure it.

Please send the news release below to your local newspapers during the first week in September. You can cut, paste and send it electronically at your newspaper’s website under SUBMIT NEWS or you can mail a hard copy via the postal service to the editor. It’s that simple.
To DOWNLOAD the link above and save to your computer -
Right click (PC) / Ctrl+click (Mac) then choose "Save link as..."

EDUCATIONAL MATERIALS - below is a link to the NORD information printout for Orthostatic Tremor. A concise document that discusses the signs and symptoms, causes, affected population, related disorders, diagnosis, therapies and resources.
To DOWNLOAD the link above and save to your computer -
Right click (PC) / Ctrl+click (Mac) then choose "Save link as..."

SOCIAL MEDIA RESOURCES
Discuss your thoughts and experiences on the OT Forum . Often this is the only way that others will know how this effects the lives of those with OT.

Visit the
OT Facebook page and “Like” to help spread awareness.

Send an email to a local newspaper, or health website.


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Below are images that you can post on Facebook, Twitter or email. Right click the image and "save" it to your computer.
FaceBook Cover Photo:

How to use the use this OT Awareness Cover Photos as your Facebook Cover Photo? - To DOWNLOAD any of the images below and save to your computer - Right click (PC) / Ctrl+click (Mac) then choose "Save link as...". Then upload it to your Facebook account and choose this image as your new cover photo.
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FaceBook Post Photos:

How to use the use this OT Awareness Cover Photos as your Facebook Cover Photo? - To DOWNLOAD any of the images below and save to your computer - Right click (PC) / Ctrl+click (Mac) then choose "Save link as...". Then upload it to your Facebook account and choose this image as your new cover photo.
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MAKE A DONATION - grow awareness and help search for a cure
Raise awareness by supporting research into Orthostatic Tremor. The 2 funds that are listed on this website have been consistent in accomplishing research. It’s easy to do and effective.

Read about what has already been accomplished by these OT research funds.


And read more about how to donate.
Awareness grows by participation. Be creative, find ways to spread the word, plan a meeting, or a fundraiser for research. If you would like any of the graphics please let me know, you can adapt, alter and add your group information. If you need any of the artwork in other languages, please send the translations.

And, if possible please donate to Orthostatic Tremor research -
read more about OT research
ABOUT THIS SITE:
The purpose of this site is to share information about Primary Orthostatic Tremor (OT). Since my diagnosis, my quest to learn more about this disorder has been frustrating and difficult to track. Hopefully, for all persons interested in this disorder, this website will become a coordinating link for collecting information, contacting other people with OT, and spreading awareness of this problem. Here you will find an active forum, my story / blog, and many other people that have shared their stories, advice and tips on coping with Orthostatic Tremor. If you have any information, suggestions, stories or services that you would like to share please email me.
This website is intended to be an informal guide. Any information relating to a therapy, treatment or diagnosis must be received with caution. Only a physician is authorized to confirm its validity. It must not, under any circumstances, delay or replace the advice of the treating physician. And is not a substitute for medical advice.

medical disclaimer
website disclaimer