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Orthostatic Tremor

Information, research news and discussion

Donate to Orthostatic Tremor Research

Help support research towards the cause, treatment and cure of Orthostatic Tremor. There are now 2 funds directed towards Orthostatic Tremor Research. The NORD Research Grant Program and the Orthostatic Tremor Research and Education Fund of the University of Nebraska Medical Center.

In 2012 and 2014, the University of Nebraska Medical Center (UNMC) hosted the largest research studies into OT under the leadership of Dr Diego Torres-Russotto and the research team at UNMC. The funding for each of these previous studies was provided through the UNMC. To continue and build upon this research the UNMC has established a new fund specifically for OT research. Information about how to donate can be found below. Please donate to ensure that this very important research continues.

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The Orthostatic Tremor Research and Education Fund (01130710) at the University of Nebraska Foundation.


“We are proud to partner with the University of Nebraska Foundation,” said Dr. Torres-Russotto. “The Fund is under the care of our Department, and it can only be used for Orthostatic Tremor. Any of our researchers in OT may apply and funds will be granted based on scientific merit and criteria to benefit OT.”

Learn more by clicking on the link below.

The Orthostatic Tremor Research and Education Fund


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NORD's Research Grant Program provides seed money in small grants to academic scientists studying new treatments or diagnostics for rare diseases. The clinical researchers supported by NORD's research grants provide preliminary data indicating that a treatment (drug, device, or medical food) may be safe and effective when used for a larger number of patients. Researchers can then use the preliminary data to apply for larger multi-year government grants or to attract a commercial sponsor who will manufacture an orphan product and get it approved for marketing by the U.S. Food & Drug Administration (FDA).

DONATING FOR RARE DISEASE RESEARCH
Donors may target their donations to research on a specific disorder. NORD encourages potential donors interested in disease-specific research to conduct fundraising efforts so that a sufficient amount of money is made available, within a reasonable period of time, to attract the highest quality research proposals. Medical research is expensive so a minimum of $33,500 is required to fund one grant. When this target amount is reached, NORD begins the process of issuing a request for research proposals.

read more about NORD...

Click here to read more about the program and how to donate, let's work together to find a cure!

**The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
ABOUT THIS SITE:
The purpose of this site is to share information about Primary Orthostatic Tremor (OT). Since my diagnosis, my quest to learn more about this disorder has been frustrating and difficult to track. Hopefully, for all persons interested in this disorder, this website will become a coordinating link for collecting information, contacting other people with OT, and spreading awareness of this problem. Here you will find an active forum, my story / blog, and many other people that have shared their stories, advice and tips on coping with Orthostatic Tremor. If you have any information, suggestions, stories or services that you would like to share please email me.
This website is intended to be an informal guide. Any information relating to a therapy, treatment or diagnosis must be received with caution. Only a physician is authorized to confirm its validity. It must not, under any circumstances, delay or replace the advice of the treating physician. And is not a substitute for medical advice.

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