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Orthostatic Tremor

Orthostatic Tremor

Information, News, Research, and Discussion

Orthostatic Tremor Awareness Month

FOR IMMEDIATE RELEASE:

September - Orthostatic Tremor Awareness Month

September has been designated as the Orthostatic Tremor Awareness Month at an International Orthostatic Tremor Meeting, assembled in Omaha, Nebraska, September 22-26, 2014. Those attending came from Canada, Spain, Australia and the US.

Dr Sue Boyd, a former Australian Ambassador and delegate to the United Nations, presented the idea of September as the Orthostatic Tremor Awareness Month. The proposal was received with unanimous approval, and was endorsed by Dr Torres-Russotto, who emphasised the need to build awareness around the world. "It's a very rare condition, so it's quite an achievement to get so many patients to congregate in Omaha," said Diego Torres-Russotto, M.D., a movement disorders specialist at UNMC.

Orthostatic Tremor (OT) is characterized by high frequency tremors of the legs when in a standing position and an immediate sense of instability. It is a little known, and often ill diagnosed neurological movement disorder.

We call upon all those dedicated to the elimination of OT to work together, especially focusing on this special month of awareness, working together with the common goal to build awareness, compassion and research of OT.
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Awareness grows by participation, and all groups will have the opportunity to join hands to mark the first annual Orthostatic Tremor Month in September of 2015. Be creative, find ways to spread the word, plan a meeting, or a fundraiser for research. If you would like any of the graphics please let me know, you can adapt, alter and add your group information. If you need any of the artwork in other languages, please send the translations.
ABOUT THIS SITE:
The purpose of this site is to share information about Primary Orthostatic Tremor (OT). Since my diagnosis, my quest to learn more about this disorder has been frustrating and difficult to track. Hopefully, for all persons interested in this disorder, this website will become a coordinating link for collecting information, contacting other people with OT, and spreading awareness of this problem. Here you will find an active forum, my story / blog, and many other people that have shared their stories, advice and tips on coping with Orthostatic Tremor. If you have any information, suggestions, stories or services that you would like to share please email me.
This website is intended to be an informal guide. Any information relating to a therapy, treatment or diagnosis must be received with caution. Only a physician is authorized to confirm its validity. It must not, under any circumstances, delay or replace the advice of the treating physician. And is not a substitute for medical advice.

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