Newbie

[MikeS]

Hi
My name is Michael 58yrs old .I live in Spain.
After about 8/9 yrs of suffering from this peculiar disorder I was finally digonosed on Monday .The neuroligist was quite excited as I was the first case he had ever come across.I to was pleased as I know had 'something' with a name instead of this shakey thing and I no longer have to explain why I cant stand for a few minutes or line up for anything....never liked buffets much anyway.
Ok this is just an introduction and now Im going to read al the posts.

[stella R]

HEllo Michael
Welcome to our group.
We hope to hear more from you. IT is always a relief to be able to put a name on this
rare condition.
All of us are so grateful to GLORIA. Without this forum we would be a lonely group
of people for sure.
take care and keep in touch
stella

[linzi]

Hi Michael
Welcome!
I know what you mean about buffets I don't like them much either. Always feel I look as if I'm barging other people out of the way, when all I'm trying to do is a balancing act with a paper plate and a cup!
Much better to shout your orders out to friends or family who understand the condition whilst sitting on a chair! Although then you worry about looking lazy/bossy!

[Chris]

Hi Michael
Welcome...I too am 58 years old and it was a relief when I finally had a name for my shakiness. I have had symptoms for about 10 years now but have really increased in the last 2 years...quite dramatically in fact. We just get by the best we can and change the way we go about our daily lives. I too hate buffets but I have a good family and group of friends who are very helpful....almost too helpful at times.
Hang in there !
Chris

[Betty]

Hi Michael,

Welcome to the OT Forum! I think you will find it very helpful to know there are many others who suffer the same things and experience the same problems as you. I find it a comfort to know I am not alone; and when I describe something, others know exactly what I mean. We have all walked a mile in your shoes!

I have had OT for approximately 15 years and was finally diagnosed in 2003. It was such a relief to have a name for these severe tremors; even though I was told little is known about the condition and what to do for it. It is now learning different ways of coping with every day events ~ things I (we) always took for granted; now become a challenge.

I think you will find everyone will try to be helpful to you, answering questions you may have; whether it's something you are experiencing or medications you may take.

We all have Gloria to thank for this site; because through her research for information regarding OT, this site was created and has grown to what you see now.

Good luck and keep a positive attitude!

Betty in Florida

[Patty R]

Hi Michael,
I am 59 and will turn 60 by the end of the year. I started having symptoms 12 years ago but had a dramatic increase in symptoms and severity about 9 years ago. I was lucky in the fact that it was diagnosed correctly after only one year. I found the OT site and a medication (Neurontin) that worked for me through the OT site.
At buffets, if I am alone, I call a wait person over, explain that I can't stand in lines, tell them what I want and give them a big thank you and a bigger tip. That always works for me and it doesn't draw any attention to me which is what I like. Oh, you have to have gone past the buffet so you can tell the wait person exactly what you want.
Hope this helps,
Patty R