The Orthostatic Tremor Forum (archive)

Hi Candyse. It's good to read your comment. I guess that for me the reason that I don't comment very often is that I spend most of my time just trying to cope with leading as normal a life as possible with this difficult condition and rarely get time at the computer. In New Zealand Gabapentin is ver...

Thanks for that Gloria - I agree about the need for research - what I've found though is that because (particularly in New Zealand) tremors are dealt with by Neurologists - it seems that they don't necessarily look at the body as a whole - just the nervous system. Maybe we need to get a few endocrin...

Does anyone know if there has been any research done on whether there is any link between adrenaline overload and POT? I've noticed that my tremor is far more manageable when I am well rested and that it is noticeably worse when under stress or tired. I'm wondering whether this is a response of the ...

Hi Kaylie As I read your message I could really understand your frustration at not being heard by people. I was fortunate enough to get referred to a Neurologist who specialises in tremors. After a lot of trial and error I'm now on a cocktail of medication with very few side affects and can stand fo...

Hi Margie Thanks for that. I've had a look. I finally seem to have arrived at a cocktail of medication now that keep my tremor markedly reduced so that I can carry on with an adapted lifestyle. The statin medication doesn't appear on the list. Maybe I just have to come to terms with the tremor, acce...

Hi Just wondering whether there is anyone else diagnosed with OT who is also on statins to reduce their blood cholesterol level. Looking back I can tie the onset of my tremor to when I started on statins. Not sure if this is just a co-oincidence and would like to know if anyone else has experienced ...