Numbness and tingling in legs
Moderator: gloria
Numbness and tingling in legs
Hi , newly diagnosed. This morning is first I experienced numbness and tingling in right leg upon weakening. Has lasted bout thirty minutes , then vanished. Even walking with cane was very difficult. Has anyone else experienced this ? Does it happen often ? Be very happy to receive a response to this Thanks everyone. Patricia Milford , Ct
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babyboomer54
- Posts: 7
- Joined: Mon Apr 28, 2014 5:54 am
- Location: Sandstone Point Qld Australia
Re: Numbness and tingling in legs
Hi patrica,
l do experience a tingling in my feet and hands when I am laid in bed or if I wake in the night. I have had ot for a while but was only diagnosed this year. I tried medication but found that it had no effect apart from making me very sleepy. So l am just plodding on.
Do you find when you are on your feet for a while you feel so exhausted? Regards Denise
l do experience a tingling in my feet and hands when I am laid in bed or if I wake in the night. I have had ot for a while but was only diagnosed this year. I tried medication but found that it had no effect apart from making me very sleepy. So l am just plodding on.
Do you find when you are on your feet for a while you feel so exhausted? Regards Denise
Re: Numbness and tingling in legs
Hello Denise: I read your posting that you are newly diagnosed with OT and are just plodding along with questions about things not working for you. I see you are from Australia and I want to bring your attention to the posting on the Forum page by Sue Boyd also from Australia about the ---- 2014 Australia Palient Information Day ---- Nov.29th----Nedlands,Western, Australia. Dr. Julian Rodrigues will make a presentation. There you will be able to meet with other OT people, ask questions of them and Dr.Rodrigues too. Even if you live a great distance from this meeting area I would make every effort to travel the distance to attend. You will come away feeling so much stronger about dealing with OT. Sue Boyd traveled from Australia to the Omaha, Nebraska, USA for our Meeting & Research. Her participation was great and she knows the importance of meetings for OT'ers.
Hope you make plans to go, Gloria
Hope you make plans to go, Gloria
Re: Numbness and tingling in legs
I was just diagnosed in March with OT. I have had symptoms for several years. I also have the tingling and numbness in hands and feet. My lower back and legs hurt all the time. I help plant the garden Saturday and it really made me hurt. For about 2 days it hurt to walk and now I feel like I have no energy. I would like to know if any of you still work and what kind of work are you able to do? Going to the grocery store takes a toll on me. Worn out!!!
Re: Numbness and tingling in legs
Greetings to all who have the numbness and tinging in their feet, I have this as well, but mostly lying down in bed, walking around, I hardly notice it..
I exercise with a DVD one to one and a half miles most days, just to keep me stronger. I do not think it really helps the OT.
I am 81 years if age, and was diagnosed in 2012 and also have most the symptoms you all describe.. and YES!! going to the grocery shop, while fun, is very tiring, by the time I get home, I too am exhausted.
I have been on Clonazepam for most of the time, it really only just keeps me going, and because I tried to miss a dose, the other night, I nearly landed on the floor, with no one to help me, but I got the pill down just in time. Now that was NOT good, will not try it again. I could have landed up in ER again.
So I am going to buy one of those Medical Alert push button things, last night was too close for comfort, and very scary, with no body to take care of me. My husband died 9 months ago.
Like one of the letters I read,, I think this Clonazepam, is beginning to have little affect, I am taking 0.2mg every 4-5 hours..so maybe I need some other pill as well, I take a huge amount of excellent vitamins, and I have been a Vegetarian Health nut, for 35 years, I wonder if this has anything to do with my OT. Maybe stress did it.
So I will value anything new idea's from anyone of you dear folks who are suffering this dreadful OT..I know, right now, there is no known cure for it. It has taken all the joy from my once very healthy life.
But I did wonder, if Cappa Dopa, ((spelling ) helps the Parkinson folks to stop the hand shaking, could we not have a weaker pill, simular to that, any thoughts?
I exercise with a DVD one to one and a half miles most days, just to keep me stronger. I do not think it really helps the OT.
I am 81 years if age, and was diagnosed in 2012 and also have most the symptoms you all describe.. and YES!! going to the grocery shop, while fun, is very tiring, by the time I get home, I too am exhausted.
I have been on Clonazepam for most of the time, it really only just keeps me going, and because I tried to miss a dose, the other night, I nearly landed on the floor, with no one to help me, but I got the pill down just in time. Now that was NOT good, will not try it again. I could have landed up in ER again.
So I am going to buy one of those Medical Alert push button things, last night was too close for comfort, and very scary, with no body to take care of me. My husband died 9 months ago.
Like one of the letters I read,, I think this Clonazepam, is beginning to have little affect, I am taking 0.2mg every 4-5 hours..so maybe I need some other pill as well, I take a huge amount of excellent vitamins, and I have been a Vegetarian Health nut, for 35 years, I wonder if this has anything to do with my OT. Maybe stress did it.
So I will value anything new idea's from anyone of you dear folks who are suffering this dreadful OT..I know, right now, there is no known cure for it. It has taken all the joy from my once very healthy life.
But I did wonder, if Cappa Dopa, ((spelling ) helps the Parkinson folks to stop the hand shaking, could we not have a weaker pill, simular to that, any thoughts?
Re: Numbness and tingling in legs
rhodie: Thanks for your posting it was good to hear from you but sorry about the loss of your husband, I have been a widow since 2007 so I understand being alone. . As far as grocery shopping I have mentioned before that I have now engaged someone to go shopping with me. Being alone this has been a great help .... I have a Medical Alert phone and cell phone combination and it is great!.... Don't worry about being a Vegetarian Health nut that is a good thing and it certainly did not cause your OT. I think the medication the you meant was Levodopa/Carbidopa , I had an experience with it and was not good for my OT.
Keep us posted, Gloria
Keep us posted, Gloria
Re: Numbness and tingling in legs
Gloria, so good to have your reply, thanks for telling me about that last drug I mentioned in my letter...spelling ??
When I was first diagnosed, nobody, even the neurologist, had never heard of it, let alone a cure, so I looked it up on the Web, I saw, he was right, they do not know of any cure, even the Head Neurologist a Mayo, who had me tested for those tremors, which never showed up, because I think the Lorazepam, I was then taking, took away the tremors...well he thought that too.
I have had every test you can even mention, and all came back negative. Blood work, perfect...If I were a rich girl, I would like pictures of my brain in color, very expensive, just to see what that could tell the Doctors !!
However on taking, 0.5mg of Clonazepam, three times a day as the Doctor suggested, my legs felt, as if they weighed 100 lbs each, I only weigh 117 lbs..so you can see what I mean, that is why I take only 1/2 that tablet.
The Doctor had tried many drugs on me, nothing really helped.
Sitting down for too long, is not good for me, but lying down is the best, I feel 100%..but we cannot do that all day.
My dear husband insisted on pushing me around, in the shops, wheel chair, and that was good, so he never lost me in the shop either..So, whoever finds a cure for us, and there seem to be thousands of us, to begin with I thought I was the only one, and what had I done, or NOT done to get this present torment.
Look forward to any new information, or suggestions.
Rhodie139
When I was first diagnosed, nobody, even the neurologist, had never heard of it, let alone a cure, so I looked it up on the Web, I saw, he was right, they do not know of any cure, even the Head Neurologist a Mayo, who had me tested for those tremors, which never showed up, because I think the Lorazepam, I was then taking, took away the tremors...well he thought that too.
I have had every test you can even mention, and all came back negative. Blood work, perfect...If I were a rich girl, I would like pictures of my brain in color, very expensive, just to see what that could tell the Doctors !!
However on taking, 0.5mg of Clonazepam, three times a day as the Doctor suggested, my legs felt, as if they weighed 100 lbs each, I only weigh 117 lbs..so you can see what I mean, that is why I take only 1/2 that tablet.
The Doctor had tried many drugs on me, nothing really helped.
Sitting down for too long, is not good for me, but lying down is the best, I feel 100%..but we cannot do that all day.
My dear husband insisted on pushing me around, in the shops, wheel chair, and that was good, so he never lost me in the shop either..So, whoever finds a cure for us, and there seem to be thousands of us, to begin with I thought I was the only one, and what had I done, or NOT done to get this present torment.
Look forward to any new information, or suggestions.
Rhodie139