The Orthostatic Tremor Forum (archive)

My neuro is still saying they are OT's but I am not convinced that that is all that is going on. He put me on Topamax for seizures which is controlling the tremors I was having (for the most part) but now the episodes I was having resemble narcolepsy instead of seizures.

I do have a lot of problems with standing for any amount of time and it seems to be getting worse. That, I am relating to the OT's. And sitting down does relieve that. But sometimes, I do feel the need to nap or at least lay down because I might get dizzy/woozy or exhausted from it.

I've read the symptoms on some of the websites, but you all are the ones experiencing it, so I am asking you, what are your symptoms as people who experience OT's, so that I know what it is I can relate to my OT's and what symptoms I should be relating to something else.

Thanks.
Theresa

I think it isonly normal that we get tired after trying to go about our daily activites. It takes a lot of energy to tense the body to stand jusst that moment longer. And the tremor must work the muscles quite a lot as if they are exercising.