Multiple symptoms
Posted: Thu Oct 22, 2009 11:52 pm
Hi,
I was diagnosed three months ago with OT after more than 10 years of symptoms which were dismissed as either exaggeration or simply put into the "too hard basket". I would be interested to hear from others who have multiple "morbidities" (isn't that a GREAT word?). I have had a couple of slight strokes and after brain scans was told that there had been no permanent damage. I had surgery for a totally blocked carotid artery in 2004 and a heart attack which led to a stent implant in 2005. I also have peripheral neuropathy.
When I was tested for OT, my tremors were rapid and were visible and I also froze after resting between tests and then trying to move into position to resume. All this was grist for the mill for the researchers who filmed and recorded the session.
My neurologist confirmed that I had severe tremors and also peripheral neuropathy. He believed that my strokes HAD damaged a part of my brain called the (pedunculupontine) which controls movement and balance. I started on Lyrica and am now taking 150mg twice a day. My improvement was immediate and amazed my husband and friends and of course the researchers too. I can now stand to cook, hang the washing on the line, stop to speak to friends in the street, do the housework without assistance, and most surprising of all, play golf. Also the severe neuropathic pain has almost disappeared. I can't really walk a straight line - I swerve from side to side - but I feel I have been given a new lease on life.
My neurologist, Dr Rob Wilcox, and other colleagues are doing research into OT, specifically freezing - when does it occur? is it similar to the freezing of Parkinson's? etc.
I am thrilled to bits. I would like to hear from others with OT who are taking Lyrica and who also have other complaints. It is hard to know where one condition ends and the other starts and what effect medication for one could have on the other. I would also like to hear of any side effects they have experienced.
Cheers for now
Vallis
I was diagnosed three months ago with OT after more than 10 years of symptoms which were dismissed as either exaggeration or simply put into the "too hard basket". I would be interested to hear from others who have multiple "morbidities" (isn't that a GREAT word?). I have had a couple of slight strokes and after brain scans was told that there had been no permanent damage. I had surgery for a totally blocked carotid artery in 2004 and a heart attack which led to a stent implant in 2005. I also have peripheral neuropathy.
When I was tested for OT, my tremors were rapid and were visible and I also froze after resting between tests and then trying to move into position to resume. All this was grist for the mill for the researchers who filmed and recorded the session.
My neurologist confirmed that I had severe tremors and also peripheral neuropathy. He believed that my strokes HAD damaged a part of my brain called the (pedunculupontine) which controls movement and balance. I started on Lyrica and am now taking 150mg twice a day. My improvement was immediate and amazed my husband and friends and of course the researchers too. I can now stand to cook, hang the washing on the line, stop to speak to friends in the street, do the housework without assistance, and most surprising of all, play golf. Also the severe neuropathic pain has almost disappeared. I can't really walk a straight line - I swerve from side to side - but I feel I have been given a new lease on life.
My neurologist, Dr Rob Wilcox, and other colleagues are doing research into OT, specifically freezing - when does it occur? is it similar to the freezing of Parkinson's? etc.
I am thrilled to bits. I would like to hear from others with OT who are taking Lyrica and who also have other complaints. It is hard to know where one condition ends and the other starts and what effect medication for one could have on the other. I would also like to hear of any side effects they have experienced.
Cheers for now
Vallis