The Orthostatic Tremor Forum (archive)

A few weeks ago I was in a chatroom (for people with Lupus) & mentioned my OT. One of the members mentioned that there had been a programme on tv in Germany about a woman with OT who "had to keep moving all the time, poor woman". Unfortunately, I couldnt persue this because person who mentioned it shortly left the room. Has anyone else seen this? Wouldnt this make a good documentary programme here in the UK or in the US? It is such a rare condtion that has so many interesting implications that a sympathetic documentary maker could be just waiting for the idea to be put to them. I think publicity about our condition could only help, there are probably many undiagnosed people out there & the more its recognised, the more chance of effective treatment being found.
Personally, I am getting worse, but not found anything that helps yet.
Take care, all of you.