The Orthostatic Tremor Forum (archive)

Hello friend's
My OT is getting worse!! is eny of you get the feeling like jelly legs or better say weak ?? i am 58 years old and very weak muscles,i am till working partime but i can see not for long i am getting very tired of standing up at work!! I live in Australia I donot know anybody who suffer this condition here and very hard for other people to understand what is going on with my body i also suffer from ET in the upper body i also have sleeping problems and lot of cramp in my calf muscles i am on madopar for parkinson all other medicines donot work for me.
i am sending my love to all of you Porotin

I have orthostatic tremors. I have had it for aprox. 15 years, but like Parkinson disease it is getting progressively worse. I can walk fast with a cane, but I always carry a small chair because I can't stand more than a minute, then I begin to tremor and can easily fall. My neurologist has tried all medicines, again related to The Parkinson disease. My husband had Parkinson disease and now I am on my own. My Neurologist said recently, call me when you need me. So I do a lot of exercises, like water aerobics, chi-chi, yoga, walk as much as I can outside with a walker, use treadmill and standing bicycle indoors. I live in a 3 lev. house, so the steps are also good and i exercise in the bed in the morning before I get up. ... a varity of physical therapy, prescriptions, i also have different way of walking exercises. I eat healthy food,try not to gain any weight. I enjoy a glass of red wine before dinner that relaxes me. I sleep very good. I enjoy my garden, whatever I can do sitting down,I do my own laundry etc., I take cruises and day trips. It helps to get out of the house,meet other people, have fun, laugh, that helps too. I hope I am helping other people with O.T. with my letter and I hope Stem Cell research will come to us. The problem is that very few people know what O.T is, so limited donations for us. I am looking for all the help and advice i can get. Thank you.

HI Inga,
Welcome to our group.
I was wondering where you got diagonesed.
I visit that area and haven't heard any doctors there who are familiar with this disease.
Sounds like you are doing all you can to keep in shape.
take good care
stella