The Orthostatic Tremor Forum (archive)

Hello Gloria:
I have not post for long time but i wanted to say hello to the group i occacionally came to read,I keeping well, sometime not to good, I take Epilim a small dose I continou to work part time the only things botther me is when i squat down fel like i donot have the streng to get up?? eny of you have this problems?? apart for other problem to large to mention , but i must keep going forward. Love from Sydney Australia

Hi porotin,
its always good to keep in touch with others.
We are all going through the same struggles.
Some days worse than others. It feels so good when you get a few hours
of not so shaky. I sometimes wonder what life was like before all this began. Hard to imagine when i watch others walk about steady on their feet.My greatest wish is that someday i could meet someone here or somewhere with this disease .
My husband is the most careing person but only the one who themselves
has this can truly understand what we go through.
I would so like to go for a walk with my grandaughter or take her shopping.
No can do.
enough of my rambling. I AM feeling better now than i did last month.
MRI coming up net month.
Keep smiling all