Hi
Ive been on Gabapentin for a week now and my dose is now 900mg a day (1200 next dose)
I am having side effects of feeling very tired, confused then I feel ok for a few hours.I am having trouble concerntrating and can only drive at certain times.I seem to be able to stand a little longer but I dont feel as steady when Im walking.I am not asking my Specialist about this as he hasnt taken this medication.The only people that can tell if this passes are other members who have taken it.
Any advice anybody...because if this does not pass I think I would rather have my teddy bear legs back.
Thanks
Mike.
A little help needed
Moderator: gloria
Re: A little help needed
Mike: Everyone reacts to medications differently and the expectations of what they will do for us. All of the medications that are prescribed for us are sedative and we must learn to move our bodies quicker and walk at a fast pace. Sitting and waiting for the medication to make our OT symptoms go away completely is not going to happen. There is nothing on the market today that will do that. I have said this so many times, the "aspirin affect" is not applicable here for us. However, do speak to your doctor maybe he will suggest increasing it at a slower rate so your body will adjust slower. I have been using gabapentin for seven years and yes if I'm having a sedentary day I will feel sleepy too. However, the more active I am the better the day. Gloria
Re: A little help needed
Mike - I love your 'teddy bear legs'. Yes, I'd rather continue have those than go about like a zombie.
Just discovered a tiny improvement. Might only apply to me, of course. I find if I stand on one leg, not both, the OT takes longer to 'come on'. Anyone else find this?
I expect I speak for all of us UK OTs in asking for as much feedback as you Rochester meeting people can give us. Good luck!!!!
Richard
Somerset, UK.
Just discovered a tiny improvement. Might only apply to me, of course. I find if I stand on one leg, not both, the OT takes longer to 'come on'. Anyone else find this?
I expect I speak for all of us UK OTs in asking for as much feedback as you Rochester meeting people can give us. Good luck!!!!
Richard
Somerset, UK.
Re: A little help needed
Hi Richard,
Yes! I do find that I am more stable if I stand on one leg--(holding on to something of course--without leaning or touching something I cannot stand on one OR two legs.) Whenever I'm at a checkout counter, bank or whatever I always lean on the counter and stand on one leg. I was going to post about it but I thought it was something idiosyncratic or in my imagination. But one leg definitely feels more steady than two. Wonder what that's all about.
Harriet
Yes! I do find that I am more stable if I stand on one leg--(holding on to something of course--without leaning or touching something I cannot stand on one OR two legs.) Whenever I'm at a checkout counter, bank or whatever I always lean on the counter and stand on one leg. I was going to post about it but I thought it was something idiosyncratic or in my imagination. But one leg definitely feels more steady than two. Wonder what that's all about.
Harriet
Re: A little help needed
Good to hear you've experienced the one-leg effect, Harriet. It doesn't last too long, for me, probably because the leg I'm standing on declares it's had enough anyway. It is nevertheless definitely an improvement, however temporary, and I've reported it to my neurologist.
Meanwhile, do you think you Rochester-meeting-people could take this event with you? Perhaps someone will have some ideas that could be useful. ANY port in a storm.......
Richard
Meanwhile, do you think you Rochester-meeting-people could take this event with you? Perhaps someone will have some ideas that could be useful. ANY port in a storm.......
Richard
Re: A little help needed
hh
dear richard in marbella spain betty from dublin calling probably much older than you nana to 7 and mother to 4 grown-up i was diagnosed about 3 yrs ago having persuaded my gp that i was not imagining the tremor which i get also a snall body tremor as well as the shaky legs while standing in queues useed a stick at first but now usew a walking frame - unwillingly - as i am embarassed but it has given me confidence i hear you can get one with a seat which i am investigating its a bit awkward on the bus as there is no lock on wheels and they kept rolling forward i only travelled once on bus and lastr week travelled a shoret journey on train and i was amazed at the jhelp i got from young people including a 17 yr old schoolboy i am taking clonazapan - rivotril 0.5 mg at night as i find to take another in the morning slows me up to much i hope you will have some improvement i hear there no cure as i was told its something yo do with the cerebellum in my case age-related sorry for bad typing hope your weather is better yhan ours and england altho today one of my daffodils is trying to bloom spring is coming god bless from nana betty - sparrow .
dear richard in marbella spain betty from dublin calling probably much older than you nana to 7 and mother to 4 grown-up i was diagnosed about 3 yrs ago having persuaded my gp that i was not imagining the tremor which i get also a snall body tremor as well as the shaky legs while standing in queues useed a stick at first but now usew a walking frame - unwillingly - as i am embarassed but it has given me confidence i hear you can get one with a seat which i am investigating its a bit awkward on the bus as there is no lock on wheels and they kept rolling forward i only travelled once on bus and lastr week travelled a shoret journey on train and i was amazed at the jhelp i got from young people including a 17 yr old schoolboy i am taking clonazapan - rivotril 0.5 mg at night as i find to take another in the morning slows me up to much i hope you will have some improvement i hear there no cure as i was told its something yo do with the cerebellum in my case age-related sorry for bad typing hope your weather is better yhan ours and england altho today one of my daffodils is trying to bloom spring is coming god bless from nana betty - sparrow .
Re: A little help needed
hh
dear richard in marbella spain betty from dublin calling probably much older than you nana to 7 and mother to 4 grown-up i was diagnosed about 3 yrs ago having persuaded my gp that i was not imagining the tremor which i get also a snall body tremor as well as the shaky legs while standing in queues useed a stick at first but now usew a walking frame - unwillingly - as i am embarassed but it has given me confidence i hear you can get one with a seat which i am investigating its a bit awkward on the bus as there is no lock on wheels and they kept rolling forward i only travelled once on bus and lastr week travelled a shoret journey on train and i was amazed at the jhelp i got from young people including a 17 yr old schoolboy i am taking clonazapan - rivotril 0.5 mg at night as i find to take another in the morning slows me up to much i hope you will have some improvement i hear there no cure as i was told its something yo do with the cerebellum in my case age-related sorry for bad typing hope your weather is better yhan ours and england altho today one of my daffodils is trying to bloom spring is coming god bless from nana betty - sparrow .
dear richard in marbella spain betty from dublin calling probably much older than you nana to 7 and mother to 4 grown-up i was diagnosed about 3 yrs ago having persuaded my gp that i was not imagining the tremor which i get also a snall body tremor as well as the shaky legs while standing in queues useed a stick at first but now usew a walking frame - unwillingly - as i am embarassed but it has given me confidence i hear you can get one with a seat which i am investigating its a bit awkward on the bus as there is no lock on wheels and they kept rolling forward i only travelled once on bus and lastr week travelled a shoret journey on train and i was amazed at the jhelp i got from young people including a 17 yr old schoolboy i am taking clonazapan - rivotril 0.5 mg at night as i find to take another in the morning slows me up to much i hope you will have some improvement i hear there no cure as i was told its something yo do with the cerebellum in my case age-related sorry for bad typing hope your weather is better yhan ours and england altho today one of my daffodils is trying to bloom spring is coming god bless from nana betty - sparrow .