March 10, 2016 presentation by Dr Jankovic on Orthostatic Tremor in Houston Texas

Moderator: admin

Hello everyone,

My dad Tim has had OT for many years but was just properly diagnosed recently. We are glad that this forum provides a pathway for him to better understand the condition, as well as meet others that share the same experiences as he does. We are both interested in attending the Houston meeting but since we will be traveling from Eastern Canada we wanted to confirm that it is still happening. I believe my dad emailed Pat before the holidays but didn't get a response. If someone could please confirm that the event is still on as well as provide a recommendation on a hotel where we could stay, that would be great.

Thanks and look forward to meeting many of you,
Hi Harry

The meeting/event is still on and I've received the following from Pat, she is handling the arrangements with the hotel.
We are finalizing arrangements to stay at the Crowne Plaza River Oaks in Houston. Next week we will post the contact information HERE for attendees to make their own reservations at a special rate. Please do not make your reservation before then. If you plan to attend and have not yet notified us, please let Pat Whitney know at Thank you
A group rate has been negotiated with the Crowne Plaza River Oaks, 2712 Southwest Fwy, Houston, TX 77098

I encourage you to make your Hotel and Shuttle reservations ASAP as the Rodeo is in Houston while we are there and the demand for rooms will only increase. Thank you and look forward to seeing you!

Reservation Process:
To make reservations, please call 800-227-6963 and ask for reservations to book rooms under the Orthostatic Tremor Medical Group block. OR use this link >Orthostatic Tremor Medical Group

Reservations must be made before the cut-off date of 02/24/2016 to receive the group rate.

Check In/Check Out: For GROUP attendees check-in and check-out times will be: Check-in: 3:00 PM; Check-out: 12:00 PM. Departure extension or late check outs are based on availability.

All individuals are responsible for their own room, tax and all incidentals charged to their room.

Parking at Hotel:
Self-Parking overnight is available for $9.00 per vehicle per day
Attendee Self Parking is available for $6.00 per vehicle per day
Valet Parking overnight is available for $15.00 per vehicle per day

Airport Shuttle
Guests will make own arrangements for shuttle or limo service
See rates and schedule at link > ... roaks.html


Please let Pat Whitney know if you have made a reservation and/or are attending the meetings on March 10 and 11.

I will not be able attend because I am going to the Philly Flower Show. It was a difficult decision and I wish everyone a great meeting. I will look forward to reports from the meeting. I would like to connect with other OTers who love gardening (I am addicted and pull myself along the ground) and cooking (I may write a cookbook, "The 'I Can't Stand to Cook' Cookbook.") Connie from Ringoes, NJ
Connie: Sorry you will not be attending our meeting in Houston and we will miss you but understand your dedication to gardening. Here on the website we have a topic section listed as " Re: Gardening with OT". I suggest that you go there and you will find some devoted OT gardener members here on the website to connect with and share gardening skills, etc. All the best, Gloria
Hi WGlover

Below is outline of the event and for additional information you can contact :
Thursday, March 10, 9:00-11:30 AM WINDSOR 1 MEETING ROOM

9:00-9:30 -- name tags, fee and voluntary donation collections (Pat, Helen)
9:30-9:45 – welcome by Gloria
announcements regarding dinner and afternoon meeting (Pat)
9:45-10:15 – updates on
Fundraising & research at NORD (Pat)
University of Omaha Foundation (Wini)
Dr. Torres-Russotto’s clinical studies (Peggy)
10:15-11:30 -Experiences with OT: Treatment that brought results (Jane, Pat and others?)

Thursday, March 10, 1:00-3:00 WINDSOR 1 MEETING ROOM

1:00-1:05 -- Introduction of Dr. Joseph Jankovic (Maggie)
1:05-2:00 -- presentation by Dr. Jankovic, including Q and A
2:00-3:00 -- follow up general group discussion, (moderated by Michael)

Friday, March 11 9:30-11:30 AM WINDSOR 1 MEETING ROOM

9:30-10:00 -- New Business (including future meeting suggestions, discussion topics)
10:00-11:00 -- Questions, comments, ideas for fundraising
11:00-11:30 -- Old Business, suggested reading materials, call for volunteers to serve on committees -- fundraising, meeting planning, awareness raising and other…. Announcements regarding dinner.

Just responding to the question about OT being hereditary. My sister has ET and I have OT. We don't know of anyone else having it but I remember my grandmother being in bed a lot and walking with a stick. That could just be old age or was it undiagnosed OT? Who knows back then!
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