Moderator: gloria

By admin
OT RESEARCH NEWS 2015 - Congratulations!
A 1-year NORD grant of $30,000 for a clinical research study related to the diagnosis and/or treatment of Primary Orthostatic Tremor has been awarded! 
The funding for this grant has come from donations by the Orthostatic Tremor community and a $10,000 grant from Lundbeck, a Danish pharmaceutical company. Lundeck created a special grant for the "Raise Your Hand" Rare Disease Day Fundraising campaign.

We are fortunate that this project was the recipient of the Lundbeck grant. The remaining balance of the OT fund can be applied to future research when the fund reaches its next goal.


rTMS Therapy for Primary Orthostatic Tremor: A Novel Treatment Approach
A project to study the efficacy of repetitive transcranial magnetic stimulation therapy as a potential treatment for Primary Orthostatic Tremor patients
Primary Investigator: Aparna Wagle Shukla, MD
Institution: University of Florida


For more information on donating to Orthostatic Tremor research click on the link below:

Together we can stand up to OT!
By gloria
The NORD OT research grant for the year 2015 is great news and those who suffer from OT are very grateful,it gives hope of help in our future. Gloria
By magnbud
This is such amazing news. How wonderful that OT was awarded this grant! We are really going places! Our efforts as a community are showing results and I am excited! Maggie
By admin
It’s always interesting to see what research is being done on other movement disorders…

“A newly published study from a researcher at the University of New Mexico Health Sciences Center suggests that precisely targeting areas of the brain with a powerful magnetic field may provide relief from painful involuntary muscle contractions known as dystonias.”

The subject of the latest NORD research grant on Orthostatic Tremor is also exploring the use of - repetitive transcranial magnetic stimulation rTMS

“For the study of Primary Orthostatic Tremor, made possible by donations from the OT Resource patient community and a grant from Lundbeck, Inc., and its Raise Your Hand to Fight Rare Diseases campaign, grant awarded to: Aparna Wagle Shukla, MD, University of Florida, rTMS Therapy for Primary Orthostatic Tremor: A Novel Treatment Approach -
To read more about the research grant and how to donate to OT research >
By admin
The study record is now available for the University of Florida study “rTMS Therapy for Primary Orthostatic Tremor” - Principal Investigator: Aparna Wagle-Shukla, M.D.

The study is not yet open for participant recruitment but the inclusion criteria and other details are available in the report. The report also states the purpose and method of outcome measurement.

Estimated Enrollment: 20
Study Start Date: June 2015
Estimated Study Completion Date: December 2016
By admin
Repetitive transcranial magnetic stimulation (rTMS) is a form of brain stimulation therapy. It uses magnetic pulses instead of electricity to activate parts of the brain. Developed in 1985, rTMS has been studied as a possible therapy for depression. It may also be applied for other neurological and psychological disorders, such as Parkinson’s disease, stroke, tinnitus, obsessive-compulsive disorder, and dystonia.....

Link for more information
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