I stood up from my wheelchair and instantly had my arms out flailing the air and doing a sort of hula dance and finally dissolving into tears in less than a minute of trying to stay standing. He said, "Where is that fast tremor you described, that's like a helicopter?" I told him that we didn't get to that part because I am taking a small dose of the gabapentin. I said I mostly just have trouble with balance. He said, "Oh you have another tremor, much slower in your trunk and your head." Now he wants to try increasing the gabapentin, which I've already tried and didn't like, but he wants to go in slower incriments this time. Then when we get it at a reasonable dosage he wants to try the klonapin.
I wanted to do this at least two years ago, but that neurologist didn't want to go to the klonipin because it's so addicting. At this stage adicting seems ok to me.
There is a movement specialist on staff, there, so that may be my next step after the klonapin, maybe before.
Anyone else have two tremors going on? This slower tremor is still only upon standing, so I have no reason to think it is essential tremor or parkinsons.
I would love feedback on klonipin too.