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Survey # 1 - Thoughts, Questions, Feedback

Posted: Wed Jun 27, 2018 1:04 pm
by OTSurveyTeam

The survey results for prescription medications and non-Rx solutions have been posted on the website. The link to view the presentation can be found on the website Home page under OT SURVEYS or you can click on the following link: If you have any questions or feedback about the survey, we will be monitoring this post.

Thank You!
The OT Survey Team

Re: Survey # 1 - Thoughts, Questions, Feedback

Posted: Sun Jul 01, 2018 9:56 am
by Betty
I would personally like to congratulate the team of P. Whitta, M. Muir, P. Cirincione, and A. Muir for their outstanding job of obtaining all the information in the survey and putting it into such an excellent report.

I would also like to thank Jeff for his outstanding job of putting all the information on the forum ~ job well done by all.


Re: Survey # 1 - Thoughts, Questions, Feedback

Posted: Mon May 20, 2019 11:26 am
by lynnemariehenry
I found a neurologist who9 prescribed me a new medication called Fycompa. It really helped my symptoms for orthostatic tremor by 50%. It worked within 4 days. I have suffered with this disorder 30 years, and have had no results with various medications. This medication is expensive, but it is worth it! Perhaps you can discuss this medication with your neurologists. Lynne Henry

Re: Survey # 1 - Thoughts, Questions, Feedback

Posted: Sun May 26, 2019 8:56 am
by Jolanda
Hello Lynnemariehenry,

Since when do you take Fycompa/perampanel? for a month, four months or longer?