OT Clinical Studies to Continue!
Dear Friend of OT:
In October of 2012, 22 members of the OT Family (and 24 control subjects) gathered in Omaha, NE, to meet Dr. Diego Torres-Russotto and to participate in Phase I of the largest clinical studies on Orthostatic Tremor to date. We came home thrilled with the attention, resources and enthusiasm being directed at learning more about OT.
Dr. Torres-Russotto, the principal investigator, is on staff at the Department of Neurological Sciences, University of Nebraska Medical Center (UNMC). His research is dedicated to unlocking the causes of OT by studying balance mechanisms of “normal” subjects and balance disturbances in patients with OT.
The clinical studies Phase II will be held this September with many original participants returning to Omaha along with new volunteers from the more than 900 of us registered on the OT website.
Information about the upcoming clinical studies will be coming directly from Dr. Torres-Russotto to those signed on to participate. Anyone interested in receiving information about future studies may send name, address, email and phone number ONLY to firstname.lastname@example.org
and she will pass your name and contact info on to the doctor.
To support the costs of his research, Dr. Torres-Russotto has established the Orthostatic Tremor Research and Education Fund (01130710) at the University of Nebraska Foundation. “We are proud to partner with the UN Foundation,” said Dr. Torres-Russotto. “The Fund is under the care of our Department, and it can only be used for Orthostatic Tremor. Any of our researchers in OT may apply and funds will be granted based on scientific merit and criteria to benefit OT.”
Learn more by clicking on the link below. If you wish to join those of us who support Dr. Torres-Russotto’s work, donations may be made to OT research at UNMC.
At the conclusion of his research, Dr. Torres-Russotto will publish his findings and we will share the results on the Orthostatic Tremor website. http://www.orthostatictremor.org
Dr. Torres-Russotto’s research is separate from the OT Research at NORD (National Disorder of Rare Disorders) that we also support, and about which you will receive an update next month.
Together, we WILL stand up to OT! Thank you,
Gloria, Peggy, Helen, Maggie, Pat, Wini, Rich, Mike and Lanita
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