Surveys of medications/treatments and discussion

Moderator: gloria

Review of systems - Poll#1 (check box to answer "yes")

1.Do you have Orthostatic Tremor?
53
19%
2.Have you ever had a traumatic brain injury?
No votes
0%
3.Have you ever been knocked unconscious?
12
4%
4.Have you ever fainted?
24
9%
5.Have you ever suffered whiplash from a car accident or similar traumatic event?
13
5%
6.Have you ever had a seizure?
1
0%
7.Have you ever suffered from chronic headaches?
26
10%
8.Have you ever suffered from chronic dizziness?
10
4%
9.Have you ever had a brain tumor?
No votes
0%
10.Have you ever had brain surgery?
1
0%
11.Have you ever had an MRI or CT scan of the head?
44
16%
12.Was the MRI or CT scan normal?
33
12%
13.Did the MRI or CT scan show brain lesions?
5
2%
14.Have you ever had Lyme disease?
3
1%
15.Have you ever been diagnosed with Parkinson’s disease?
3
1%
16.Has a Parkinson’s diagnosis ever been changed in favor of an OT diagnosis?
2
1%
17.Have you ever been diagnosed with MS (multiple sclerosis)?
2
1%
18.Has an MS diagnosis ever been changed in favor of an OT diagnosis?
2
1%
Check this box and then click on "Submit Vote"
38
14%
By Janevece
#5270
This is the first in a series of polls designed to learn more about commonalities among those with Orthostatic Tremor.

These polls will begin as a review of systems starting at the head and working through the body. Polls about medication, symptoms, coping and other topics will follow. Questions are based on personal symptoms as well as those observed and read about.
Some questions appear random and off topic, but there is a purpose in asking them.
Brief comments will be accepted at the bottom of the page.
Poll answers will be the basis for future, more specific questions.

Even though you need to be logged in to post your answers the results are anonymous.The poll does not post who answers the questions, it only posts the results

THIS POLL IS FOR GENERAL INFORMATION, AND ANY DECISION TO START OR STOP USING MEDICATION, THERAPY OR TREATMENT CAN ONLY BE MADE BY YOUR PHYSICIAN.

This is not a scientific poll and is for informational use only.
Any information relating to a therapy, treatment or diagnosis must be received with caution, and is not a substitute for medical advice.
If you have any specific questions about any medical matter you should consult your doctor or other professional healthcare provider.
If you think you may be suffering from any medical condition you should seek immediate medical attention.

You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information in this poll.

Thank for participating!
By Tim
#5305
I can read the poll results but am unable to do the poll- so I would like to give an anecdotal response. I do have scoliosis and have been treated with a raised shoe because one hip was higher than the other. I stopped doing that a long time ago because the shoe was too heavy and dragged and the insert did not seem to accomplish anything. This poll reminded me that maybe I should have that looked into again. I also have had a spinal xray.

Thanks for doing these surveys. Since the conference in Houston, my tremors which are visible have increased particularly on days without enough sleep or stressful times.

Tim
#5307
I can see the poll but unable to respond When I was six I was hit on the head with a baseball bat during recess. I passed out, was diagnosed with a concussion and became dyslexic. I also have ongoing right side migraine headaches and have taken imetrix for nearly 20 years. I have had both MRIs and CAT scans of my brain and have abnormalities on my upper spine. I was diagnosed with POT after I fell and broke my ankle and leg after experiencing tremor after stopping on a staircase holding a computer tower in both hands. I was also diagnosed with essential tremors after 30 years taking lithium for bipolar and never entrapment in both arms causing numbness in both little fingers and half of each third finger. My answers would be no to all the other questions.
#5310
How do you register to complete the questionnaire? I have had a series of spinal problems ultimately resolved by spinal fusion but no experience of brain trauma. The only dizziness experienced has come from the medications prescribed for OT.
Always happy to contribute to the common (uncommon) cause.
Cheers
John
By admin
#5344
.

If you see the results of the poll and can't take the poll then you are likely not "logged into" the forum see the attached image below. Let me know if you have any additional problems.


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After you are logged into the forum you will see check boxes next to the questions. Click on the check box if your answer to the question is "yes"


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Then click on "Submit"

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If you haven't registered/joined the forum click here and follow the instructions REGISTER to JOIN the OT forum
By drcraige
#5394
Hi,

This is a great poll. It would be great to correlate with even more co-entities. May I suggest the investigation of the following Prior to noticing OT symptoms such as: Sleep Apnea; Herniated Discs; Anxiety.

Another correlation might be if anyone recalls having a tendency of almost habitually moving their legs while sitting prior to noticing OT. Something such as this might be a tell tale sign for early investigation or an aid in making a diagnosis prior to full blown tremor when standing.

Also, it might be helpful to collect information as to how long people could stand at the time they first noticed OT symptoms vs when they were formally diagnosed.

Thank for your work!
Craig

Thanks, will check that out!

Deep Brain Stimulation

I feel the same way about DBS!! Acupuncture works […]

Breast MRI problems

Good to know! Thanks for sharing.

"Participate in a support group"

Hola to you too. But, No se habla Espanol.