I woke one morning with severe balance and shaking issues ! up until that day I was very active and cycling a few miles each day. I had to stay in bed the first 3 months at least because I couldn,t stand ! Doctor came out to see me and diagnosed me with some sort of menieres desease ..so gave me sea sickness meds (Which didn`t make an iota of difference) So eventualy I ask to be refered to a Neuro, about 6 months after the symptoms started I finaly got the consultation ! After various test and an MRI, they diagnosed MS ! This was approx 15yrs ago, So I tried to help myself by going to an MS therapy center for 3 yrs, I came in contact with a lot of MS sufferers obviously - and none of them had the same symptoms as myself ! So last yr I ask for another consultation with a "new" Neuro, Saw him in Jan this yr 2015 ! I told him I want to be reassessed because I am questioning the MS diagnosos, he done lots of test and sent me for an MRI (That's done now) and I am awaiting for the Neuro to send me a follow up App to get the results ! But after reading the letter he sent to my GP, I saw the words (Orthostatic Tremor) Its was just like reading about myself ! I was gobsmacked

...Everything I have read on here was describing me, I never really knew how to describe my symptoms ! But everyone on here has made that job so much easier for me ! Now I have almost self diagnosed myself - and I will tell the Neuro when I go to see him next ! I cant see how he can possibly disagree with me - but I will let everyone on here know the outcome of that next visit (When I finaly get an App for it) Thankyou for listening to me everyone, My journey continues..... Sandra (UKMumma)