- Thu Jun 04, 2020 4:57 pm
I also live in Ontario and don't know anyone else who suffers with OT. I was in the care of a neurologist in Toronto (who diagnosed me) but she has gone into private practice with something totally different. She referred me to a movement disorder clinic here in Kingston (near where I live) but the neurologist I saw there had never heard of OT and basically just prescribed another medication and absolutely no follow up. So very frustrating and disappointing. My family physician (actually a team of residents led by a doctor) offers no help and seemingly knows nothing about OT either.
So I rely heavily on my very supportive husband and my sister(when she's able to) to help me navigate through life with OT.
I have learned lots of coping strategies, some work, some don't; use a rollator outside, a cane, too, a kitchen stool, a shower seat,etc. but still get exhausted after trying to do/walk too much.
I hope that you are able to get medical treatment and a lot of good support from your family and friends.
Take care of yourself .
Where in Ontario are you living?