- Wed Feb 07, 2018 1:41 pm
Dear OT friends,
It’s been an extremely long silence – nothing written here for many moons. The main reason is probably that I do not think so much about OT anymore. It sounds silly perhaps, but after getting used to the problem, managing it, accepting it – I’m not at all as focused on OT as I once was. I’m into my 8th year (or is it 9th?) with OT and I think it’s been fairly stable the last few years.
No longer do I first of all think; Can I do this with my OT – or even worse, as I automatically thought the first years; No use to even consider it, I cannot do anything ‘cause I’ve got OT! Now I think; do I want to do this, do I have time and money and whatever considerations any person might have. And then, sometimes too late, I realise that oooops – not a good idea, this will be a bit problematic due to the tremors. But I cope, or leave, or manage with help. But I rarely consider OT first.
Does this mean all is sunshine and happy days? OF COURSE NOT! But OT is not on my front page every minute of every day.
What do I do then? I travel without assistance most times. I just use my letter from Dr Bain saying I should be helped so that do not have to stand in line and ask if I can board first or use the fast track. Most of the time that works fine, especially within Europe. Transatlantic I use assistance as passport lines can be more difficult then. But I do not step onto a ladder, I do not try to balance (that’s gone), I say no to stand-around-have-a-drink-and-a-chat situations. But most other things I do.
Do I still play golf, oh yes! I use a buggy when I play abroad and at home I have an electric cart with a little stool to sit on when I wait for someone to hit their shot. Works fine for me.
Do I use medicine? No – nothing.
Have the OT worsened or become better? I think that it’s a bit better – probably because I’m used to manage most situations and do not really fuss so much about it. But I also know from experience last summer that intense joy, euphoria, soul-overturning happiness – a proper overdose of endorphins – can reduce my tremors to almost nil and it stayed amazingly well until reality come back – say 2-3 weeks perhaps.
Ah – now you’re curious…. Let’s just say that one of my childhood’s deep emotional traumas got kicked out of my system for a while. Then it’s sort of sneaked back a bit, and tremors also came back.(so my personal view that my tremors are trauma based, got stronger. - read previous notes from me to learn more)
For many this may seem like mumbo-jumbo. Happiness reducing tremors – stupid and fake and lies. And you must think whatever you want. But I know where I am, I know what works for ME, and I strongly believe that we are all different.
I believe some can be cured, some might not be, some might be helped with a new diet, or trauma therapy - others by medication, meditation, surgery … Let’s agree that there is not one single cure, but many things that might be worth trying. OK?
For those that have not read my story from the start - do, I think it may help, give another perspektive, give food for thought. I'm not saying my journey is "THE" one to follow, but I think it's a bit different perhaps, and therefore can inspire in a good way.
With my warmest wishes for a happy, healthy and positive 2018. May OT never dominate or take over our lives.