This condition we suffer from is very complicated and is hard to explain to people.I would love to see more posts and replies on here .People just telling each other how we are ,how we are coping just stuff that happens everday.I for one that has not long been diagnosed am finding new problems daily.I log on here everyday to see whats happening and it appears very little.Is it that everyone is just getting on with it? and has nothing they think worth sharing?I have now got my wheelchair,I am not taking any medication,Im considering having a badge made saying 'Unless you have 20 min to spare and really care please dont ask how I am'Do others get told by lots of people that the should try acupunture,massage,herbal cures,chanting,running ,swiming,chriopractionists,and if so have you tried it ?and does it work?Do you get fed up explaining to people that evertime you get up in the morning the whole thing starts again.Explaining how many times a day you have to stop moving...from getting dressed in the morning ,stoping to choose a shirt a pair of pants,shoes,puting kettle on opening fridge etc etc...
I am doing fine in general like all of you I have good days and bad days I try and keep my sense of humor and just get on with it But I also have the days like last week when I had to tell my 20 yr old daughter that her hero ,her big strong dad that used to be invincible in her eyes cant stand still long enough to change a lightbulb and by the way I have to use a wheelchair at all social occasions and shopping.Sorry this has turned into a rant but if I cant tell you guys how I feel who can I tell ?Only you, the people that suffer from OT really understand.
Thanks for listening
Regards
Mike
