I am new to this site hence the introduction.
I have been suffering from tremors since last November, just came on out of the blue.
Like others i have had many tests and Drs visits. I have seen three general practitioners who all said i am depressed and anxious. I kept persisting so i got many blood tests and a visit to an Endocrinologist to see if my thyroid was a contributing factor. Endo refered me to have a test for Epilepsy. Thyroid clear and no epilepsy. All DRs could see the tremor but looked at me like i was a puzzle they couldn't solve.
I quit my job due to embarrassement. I just decided to live with it. One Dr said it will either get worse or go away, i was hoping it was the later.
I got pregnant with my fourth child and my midwife refered me to a psyciatrist to talk about my tremors. The psychatrist booked me into an MRI which came back normal and booked me into a nuerologist. Since the MRI came back normal she came to the conclusion that i was in fact in denial. That i am infact depressed and anxious. ( even though i didnt in the least feel this way in the beginning).
I eventually accepted that i was indeed depressed and anxious again, i broke. I could no longer live with the isolation from hiding from the world. I couldn't help thinking that i will forever be depressed i was a blubbering mess. (pregnancy hormones didnt help). The psychatrist put me on antidepressants, which i was reluctant to take but i can honestly say i don't think i would have pulled through this time without them. I thought they would fix my tremors since it was all related to depression, but it didnt.
Finally this week i went to see the Neurologist, now 33 weeks pregnant. He has initially diagnosed me with OT but will have further testing after baby is born.
I felt immediately relieved i had a name to it. Then i felt immediately mad that i have been made to think i was crazy and went on drugs which are a risk to the baby, for no reason.
I know this is what i have, the symptoms are so simmilar to a lot of you.
I have been only able to stand for sixteen seconds before my legs start to shake uncontollably so quickly and i feel like they can't hold me up anymore. Totally fatigued. People have mentioned the shaking to me so its very obvious.
I get some relief from leaning against something but don't feel normal until i sitdown again, however i feel like i have done a work out and my muscles feel sore.
I get tired when walking a little way but unsure if that is because i have a hugh belly.
I'm sure you understand the grief i was feeling not knowing what was wrong yet i felt like i needed a wheelchair so i never had to stand again. i would look at people wondering how they stand for so long.
since finding a name for it i am more positive about finding solutions to getting my life back, for a while there i thought me and my baby would be forever restricted to indoors, alone. I had allready started pushing friends away.
I find your stories inspiring because you all seem to find a way to live with this.
I would like to ask one question if i can, how bad does it get? I am thirty and would like to know what to expect for the future?
Sorry, this is so long. A big Hi to all.