I am one of the "victims" of the long, drawn out process of trying to find an accurate diagnosis for my tremor condition. This website certainly does intrigue me. I have been diagnosed with essential tremor, and felt at the time that this was accurate since it runs in my family. Yet, two years following the diagnosis, I started having balance problems and my legs would get heavy. The more I pushed myself to keep going, the worse they would get. My medication, primidone, was greatly increased and then decreased, then discontinued altogether. My neurologist, two thus far, do not really know what's going on with my legs. Standing still is a problem, but the difficulties do not disappear when I walk. When the condition is especially severe, I tend to fall backwards and sometimes just walk in place instead of progressing forward. All tests have been run: MRI, blood work, exams; nothing new is revealed. An MS doctor told me that I do not have this disease. I feel desperate; the fatigue is tremendous to the point of having to use a wheelchair and/or cane from time to time. I have read all of the entries and feel that they are describing my condition, but have little confidence in my present doctor as far as diagnosis. I noticed that there was an entry from Georgia, USA. Would that person be willing to share the name of their doctor so that I can either confirm the OT condition or continue to investigate? I am willing to share my email address at some point if this information needs to be kept confidential. Thanks for any help you can offer!
Terri From GA