Hi to all OT's out there, yes I agree with Gloria that some of us long time members of this site should call in, I am a gunner, but never seem to get around to doing it.
I read the site on a regular basis and keep up with new callers to the site. What concerns me so many are finding the site, also what about the people who do not have the net to call in. Just how many of us OT's are really out there, is it really a rare disorder? To me it is more wide spread than we think it is, and its about time some neurologist really started to look into our condition and start some trials on OT.
I trialed for my new neurologist (new man in my life), from Melbourne Australia, and I am taking two 75mg of Pregablin mornings, and it holds all day, 24 hours, I have been on this drug for 10 months and have found it is better for me than Neurontin, I can stand a little longer (not much anyway, but cope). Also I do not have the weight problem that Neurontin did for me. I must add that I have to take 1/2 a mogodon to help me sleep, due to Pregablin, but I am happy with this, I function really well all day.
Depression is part and parcel of OT and we ALL get it some times but we have to look at the big picture and try and over come the downs. I do not have the big C (that I know of), I do not have motor neuron, I do not have Parkinsons, all much worse than what we have. I always try and do what I always have done, even if I struggle, (a wonderful husband helps), I have a beautiful garden (my passion) always sitting, but thats ok. I am addicted to family history, and also I am always doing some sort of craft.
What we should all be doing is enjoying what we have, we are very lucky that we only have OT, frustrating as it is.
And we must remember Gloria, she started this site and she is our hero, and made all our contacts possible. Kind regards Lorna.