Lack of research for this condition. No treatment; no cause; no cure.

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Theresaann
Posts: 68
Joined: Sun Jun 24, 2018 6:43 pm

Lack of research for this condition. No treatment; no cause; no cure.

Post by Theresaann »

Am I the only one who is frustrated and ANGRY that, because OT is a "rare" condition, there must be an extreme lack of research regarding it? I feel that it's because there must not be any profit in it for the pharmaceutical companies. If a FAMOUS person had it, the treatment would miraculously become available. Are there any clinical trials out there?? (My husband was hospitalized recently and underwent surgery. When he came home, I became his sole care giver during his postop recovery period. There were some medical issues to contend with after his discharge. The fatigue and stress made the OT explode into uncontrollable tremors. So what should we do? Hide in a glass cage [sitting, of course] to reduce the tremors?) I guess I'm just feeling sorry for myself, but I had to let off steam. Thank you.
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