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Orthostatic Tremor

Orthostatic Tremor

Information, News, Research, and Discussion

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SURVEYS

The information contained in the surveys should not be used when making medical decisions, and not a substitute for medical advice.

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NEW!
SURVEY 2 - Symptoms and Diagnosis of Orthostatic Tremor (OT)
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Conducted May 2019
Published October 2020

The purpose of this survey is to determine if there is progression of symptoms and characteristics associated with Orthostatic Tremor. The survey also includes questions about traumas experienced prior to the onset of Orthostatic Tremor symptoms, the process of obtaining an Orthostatic Tremor diagnosis, additional neurological diagnoses and familial neurological diagnoses. The information collected is for the members of the Orthostatic Tremor community, medical professionals, researchers and caregivers, in order to show the pervasive effects of this disorder and for educational purposes.
Authors:
Survey conducted by the following members of the Orthostatic Tremor community:
M. Muir, P. Cirincione, A. Muir

email: OrthostaticTremorsSurveys@gmail.com
SURVEY 1 - Prescribed Medications and Alternative Therapies (OT)
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Conducted April 2018
Published June 2018

The purpose of this survey is to get feedback from members of the Orthostatic Tremor community about all of the prescription medications taken for their Orthostatic Tremor symptoms throughout the years. The survey also includes questions about alternative therapies and other solutions that Orthostatic Tremor patients have tried. The information provided by the participants regarding the various medications, their ability to mitigate the symptoms of Orthostatic Tremor and their possible side effects will hopefully give people insight into the management of their Orthostatic Tremor symptoms.
Authors:
Survey conducted by the following members of the Orthostatic Tremor community:
P. Whitta, M. Muir, P. Cirincione, A. Muir

email: OrthostaticTremorsSurveys@gmail.com
ABOUT THIS SITE:
The purpose of this site is to share information about Primary Orthostatic Tremor (OT). Since my diagnosis, my quest to learn more about this disorder has been frustrating and difficult to track. Hopefully, for all persons interested in this disorder, this website will become a coordinating link for collecting information, contacting other people with OT, and spreading awareness of this problem. Here you will find an active forum, my story / blog, and many other people that have shared their stories, advice and tips on coping with Orthostatic Tremor. If you have any information, suggestions, stories or services that you would like to share please email me.
This website is intended to be an informal guide. Any information relating to a therapy, treatment or diagnosis must be received with caution. Only a physician is authorized to confirm its validity. It must not, under any circumstances, delay or replace the advice of the treating physician. And is not a substitute for medical advice.

medical disclaimer
website disclaimer