The Orthostatic Tremor Forum (archive)

Hi Marcia ....like Lynette,I too am a Kiwi and meet with her when ever we can ..I do hope some one from sth Australia makes contact ...they may well have done already privately ?... I too experiance all that you and Lynette have written and for past 3 mths or so have been on Gabapentin ,which I have...

You know Gloria ...sometimes it takes a long time for the penny to drop !!#!...:) I have always been aware of my panting when walking ,thus taking away that pleasure of talking while walking with a friend ....and even if there is no talking , the friend showing concern about our heavy breathing when...

It has been awhile since I have been on the forum ..even visiting to see how others are ...Sorry !!#!...dont know if its a good or bad thing ...just getting onwith a busy life and OT . The Gabapentin 300mg 3 time`s a day is doing it`s magic ...I have decided it is taking the edge off how I cope .......

yes Gloria and Catherine ....there are light non slip swim shoes ...designed for aqua sports,quite a few people I swim and excerise with wear them...[helps regards cracked tiles etc also] Regards once out of the pool ,some have a walker waiting or in my case a stick ...ask pool to supply a large hig...

Do not want to sound like I`m nagging ...But please all you OT`s ,give pool swimming a go ,as a form of regular excersise !!#!..you can lean on the shower walls or some pools have special needs changing rooms that have pull down seats below the shower head ....most pools have walking ramps into them...

Hello Gazunni...I swim at least 4 mornings a week ...in the pool I have never felt the tremor !!#! I believe it is because the water is giving all round support ...I wade , and do water exersises,stretches etc as well as swim ...with my cane waiting at the ready to help me get to the changing room.....

I was concerned about doubling my dose of Gabapentin , so again wrote a note to my GP ,dropping it into the surgery giving him time to think about it before I made an appointment ...I stressed I was really thrilled with how I was, but concerned about driving if I doubled the dose . He rang in and ag...

Well ...I have so much to say !!...wrote a letter to my GP ,telling him I needed help ,explaining how it was, made a appointment some day`s later ,giving him time to `ponder ` my problem .... He applied for GABAPENTIN which is restricted from the medical board ...took a few weeks to come thru ...am ...

My last post was only 5 days ago ...how things can change !! I have always been a bit cocky about swimming and pool excersise ...I now relate to the people who said they couldnt manage the getting out of pool and into the changing rooms ...last 2 swims I have had real trouble , even with my stick an...

Congratulations Gloria ...a little great grand Daughter `How Wonderful`...wallow and enjoy ,makes dealing with OT and life all worthwhile ....`these little Cameo`s ` I line up help when I need it ,those who know me well take it in their stride ...I usually try and make it a fun and social thing ...t...

could we place vibraters in our shoes!!#!....just a thought .....Didi x

p.s...wouldnt it be wonderful if it was that simple ..

Hi ...I read all the `new to the forum`...think it great the way Gloria answers , it would be super if older members would answer too , giving new OT`s a good welcome to our world ........I know the best thing to do is to visit and read all the threads ...I know I relate to 90% of them . My sculptur...

Well ...the opening has happened ....went well , I was perched like Queen bee at the top of some steps , looking down on the exhibition ..now I have 10 days ahead in the gallery working with clay ,perched on my high stool , talking to anyone that visits the gallery ,which I`m really looking forward ...

Gosh ...just reread my last post ...sound a bit heated and grumpy ...but still agree with what I said !! Joanne a new member from further up the island has spent this Saturday with a group of training Dr`s...its her story to tell, but am so thrilled the word is getting out here in New Zealand ....wi...

Dear Golfnut ....totally agree ...love your posting about reminding us about giving it a go even when there has been a set back !!#!!, ........I too still saviour the moment I danced at a wedding after a big failure at a wedding a few months before :) ..... since then a baby has been born and now le...