The Orthostatic Tremor Forum (archive)

I have been eliminated from the OT research at Omaha. :( I have had vertigo for many years on occasion due to an inner ear problem. They are going to study balance disturbances, movement disorders and unsteadiness. Of course I do have all of those symptoms. Hopefully they will learn a lot from the o...

Good news about an upcoming meeting. I would like to be in the study too! Thanks for all the help Peggy and Gloria have done for all of us.
Lorie M

Mike, Sorry for the loss of your mother. Regardless how old one is it is difficult to lose a mother. Congratulations to your daughter on her accomplishments. I do not tweet but do Facebook and I have met a couple of OT sufferers. I try to get the word out about the forum. My tremors seem to be getti...

Stella, What do you think that is, with the swallowing thing? I have been paying more attention to the situation. Swallowing is not as much of a problem as chewing when I am tired. My muscles/jaw seem to be just as tired as my legs and the rest of my body after I get tired from activities. Perhaps I...

I have been reading about voice change. I do not have that but I do notice if I am shopping and stop for a break and eat something that it may get difficult to chew and swallow. It is as if my tongue is tired! I do not choke on the food but need to take more time to chew and swallow. Has anyone noti...

Congratulations to all of you who have worked so hard to accomplish this magnificent start for help for OT. Thanks to all the effort made and I hope working with NORD provides us with some answers. I am thinking really hard about any celebrities I may know.?? I did pass the information on to the doc...

Gloria, What a wonderful event you are going to experience with the wedding coming up of your grand daughter. I think it is great that you can practice dressing since I probably would not have an outfit yet. That would not be because of OT either. Just because it takes me a long time to find somethi...

The doctor recommended I take Co Q 10, 100mg 3X day. I did for awhile but decided on my own to take one pill daily. I really should up the dose as recommended. I also take Vit. B and that is suppose to help nerves too. Whether either works I have no idea but am afraid to stop since my tremors seem t...

I have been to Mayo and have been involved with Dr. Matsumoto's research in neurology. He told me that when my arms and hands shake it is from OT. I have had OT for 15 years or so and am not in a wheelchair. I know a lot of people have worse symptoms than I do. I attribute my "better condition&...

Betty, Charee, Hello from MN, I understand that lorazapam is very similar to clonazepam. It's primary use is not for seizures as most of the other drugs that are prescribed. When I took most of those other seizure drugs it made me shake all over. Even difficult to comb my hair. Unless I wanted a rea...

Welcome Charee, I see you have just posted. This is a great site but it would be better for both of us if we did not have to join, right? I have had tremors for many years but not as bad as many people. I hurt sometimes, in fact after biking yesterday my left side was really annoying. I do not know ...

Dear Mike and Gloria, Thank you so much for getting the word out for the OT people. Good to hear your voices! I have not heard recently from the neurologist who listened to us when we met in Rochester MN. Sometimes I send him information from this site. I know he is still doing research from all the...

Peggy,

What a wonderful letter about a wonderful event. Thank you and your friends and family for helping to make the event a success. $10,090 what a fabulous response. Thank you again for all your effort!
Lorie M

Mike,
Does this mean we should all have a heart attack? Morbid sense of humor I have! I have forwarded your comments to Dr Matsumoto at Mayo. I have had no reply but thought maybe it might be interesting to him. I am hoping your surgery goes well.
Lorie M

Sharon, So sorry to hear of all your problems. Back surgery outcome is so unpredictable. I do have some minor back problems when I walk too long. Especially if I want to shop. By the time I get to the area I want in a store I have no energy to complete the task. That is usually the time my lower bac...