The Orthostatic Tremor Forum (archive)

Hello Tressa: So good to have you say hello to your understanding OT friends. When it comes to adjusting your starting with a med it generally takes a little bit of doing before you find the right dose. You should discuss with your neurologist that you are not getting any sense of relief and any adj...

Elizabeth: Welcome to the forum and happy you are going to a neurologist tomorrow and I hope that he is familiar with OT and will give you a EMG . You are in the mean age of the onset of OT. We do not know the cause of OT and I have had it for 30 years and my health is extremely good without any oth...

Michelle: Will my friend, I don't have any answer to your situation but as you are able to explore your very different OT experience we will be very interested in your findings . Keep us posted, Gloria

If someone asked me now how I go thru my days with OT , I would answer I’m mentally and physically exhausted by it but I have been living with it for 30 years !!! Naturally the time cut in my standing time has gone from minutes to seconds so by the end of day I’m expected to be tired. It is called g...

Stepford: Must thank you for posting the news of your father's experience as a participant in the Florida clinical trial on the website. We understand how your father has suffered with OT and it is very kind of you to keep us informed of the resulting help he is getting. I was just checking in for a...

Alibaba: Thank you for posting your standing time. When you were you first diagnosed with OT were you given a EMG at that time to confirm OT? Walking at a good pace is something many OT'ers can do. Sorry to hear that you have been unable to walk for the last year. Wishing you all the best and keep u...

Hi! Dee: I understand well the changes in your daily life because of OT. I've lived with it for 30+ years and because it is such a long period I have felt OT's ability to pluck away at my standing and ways of life in general. Mentally it has been more difficult now with normal aging process on board...

Hi! All OT Friends: I'm thinking of the progression part OT is playing in my life and how the normal directions that was intended in my life are now disrupted just as they are with other OT'ers. We manage to balanced some things with coping skills however some OT friends have other health issues plu...

Hello Bob: Thank you for your update but I'm sorry to hear of the frustation the lack of interest in OT that faces your wife and others in Sweden. Is there any large medical hospital centers in Sweden that you can contact and ask about having neurological movement disorder centers? I'm sure you have...

Hello Rick: I have read your posting over I few times and I'm not quite connecting with a possible OT diagnosis. However is the doctor you are going to a neurologist? If not I suggest that you find one that can evaluate your symptoms and has heard of OT and will give you an EMG to determine if you d...

Dear Betty: I must repeat to everyone again how you had been one of the first OT friends I met and have remained very good friends ever since. Right from the beginning and officially diagnosis by Dr. Seth Pullman you have OT, you have always had "feet and lower legs doing a different "twis...

Hi! Pat: Thanks for reporting your ' Standing Time' and how you are managing your life with OT. Will look forward to seeing you in Omaha in September too! Gloria

Frankie: I'm happy you feel the Sinement has stopped your tremors and you were able to stand while talking with your sister. Has your neurologist taken an EMG yet ? ......... wondering if the "nervous breakdown " that you entered the hospital with was the cause of your tremors and hoping y...

Hello Paul: I think I sent you a welcoming note on 12/19/16 ? Nonetheless, you say you thought that you had OT for a number of years ,,,how many years would that be? By the description of your symptoms you where right and now that you have been diagnosed were you tested with an EMG and what was your...

Hi! Nancy: I think this might be an interesting subject for you to question Dr. Padula about. Will be interested in his reply. Thanks, Gloria