The Orthostatic Tremor Forum (archive)

I am so sorry...

I read over my post and your are correct, it was REALLY out of place... it was a long day for me and OT takes it's toll. What I posted was my own frustration with OT.

very sorry,

Gloria

gardenlily: please read my post below - Gloria

Warren: I'm sorry to hear that the Florida clinical trial is progressively lessening but not surprised because we have heard from a quite a number of OT people that participated in the Florida clinical trial that it has not been successful for them. I know too that it was a difficult one to have par...

Mark: You keep saying you were just diagnosed but you do not say how you were diagnosed.........what kind of testing was done???????????? No alcohol is not the cause....!!!!!!!!!!!!!!! Gloria

Eric: I hope the reading of the website will help you understand the symptoms of OT you are having and find what is causing the other symptoms you are having........ Gloria

Warren : Thank-you for giving your continuing updates on your current OT status from the Florida Clinical( physically difficult trial ) !!
All OT friends appreciate your reporting. Gloria

Hi! Joan: Please let all of your interested OT friends here on the Forum know if when and where you make a decision to have DBS surgery.
All the best, Gloria

Hi ! All: As you might have read before I have been studying OT's progression and it seems when we first start with OT we average a beginning standing time of about 15 minutes but with time it reduces slowly down to seconds. It would be interesting for all to report their OT beginning standing time ...

Warren: It is so nice of you to report the current statis of your OT Treatment study at the University of Florida but sorry you feel that some of it is starting to lessen downward but still better than before the treatments. I was wondering if you are reporting this information back to the Universit...

Dear Vanna: I have reported many times on the website since it was started Jan. 18 ,2004, as our OT friends have too about our lives with OT and med's that have been prescribed for OT trial for us that only helped to eased our tremors for awhile but there is nothing that has cured our curse complete...

[quote=Brat post_id=5861 time=1501534640 user_id=2896] Hello, I have recently been diagnosed with OT. I only have the tremor in my left leg. Has this been the case for anyone else? Will it eventually be in both legs? Thanks, Brat Questions????? Welcome Brat: When and how were you given the diagnosis...

All of us who have OT experience balance as an issue but records show that we seldom fall... there seems to be a built in neurological response to prevent falling. The average OT is a disorder of progression whereby we start with standing time of minutes ( the beginning average can be from 10 to 15 ...

Balancing is part of the package of having OT however we seldom fall. I have found in my many years with OT learning to listen to my standing time to find a seat. Hearing and sight can also affect balance as it does for all ......Learning coping skills for your individual life style is the best way ...

Mimijt and All : I think better knowlege of the use of alcohol should include how alcohol affects, damages and changes regions of the BRAIN ! ! For more info Google : NIH......National Institute on Alcohol Abuse and Alcoholism.........you will find how damaging alcohol is to our OT brain. Gloria

Hi! All on the use of alcohol : I would say that maybe in the early stages of OT using alcohol might releave " the OT Beast within" however, OT is progressive and the needs to ease becomes greater thus more alcohol would make our OT imbalance even more intense and staggering. I would agree...