The Orthostatic Tremor Forum (archive)

Theresa, I was told years ago that I had essential tremor of the upper body. Years after when OT appeared it was said I did have ET along with OT. When I had the extensive testing this spring at Mayo, Dr said the upper shaking was indeed OT. I believe with each individual it may be different at diff...

Well, I told someone but maybe not here. I had a 2 hour MRI of my brain in the morning and a 2 hour session in the afternoon in the motion lab with the skull cap during the motion EMG. During the MRI I had to follow instructions with a helmet over my face. Staring at a dot and not moving except when...

Good news! Dr Matsumoto has emailed me with the comment, "Your studies are being analyzed now and look promising." I am not sure what that is all about but Peggy thought it may give us hope if I passed the info along. I have made a post about the MRI and motion tests he did at Mayo in Feb....

Lindsay, I have not experienced numbness but burning and tingling which makes me want to scratch my feet. From what I have read it seems like numbness usually goes along with it. I do not have it all the time and sometimes I get a few seconds of the tingling in my feet and hands and disappears. Dr. ...

Do people with OT also have neuropathy of the feet such as burning, tingling, or numbness of the soles of the feet?
Do you realize Mayo clinic is also doing some research with OT?

Does anyone have neuropathy of the feet? Burning or tingling and or numbness on the soles of the feet? I have developed that in the last few months. My family doctor wanted me to ask you guys if it goes along with OT. I have not read that it has but just curious to ask. I also saw Dr. Matsumoto in R...

I have been reviewing this forum today and noticed these articles about upper body tremors. I was diagnosed with OT 4 years ago but have had tremors about 14 years.I also have upper body tremors and have been told it is essential tremors since I have a brother and son with the same condition. When I...

When I walk for awhile my lower back starts to hurt. I attribute it to my muscle spasms I have to keep steady. I also have bulging disks but the pain from that usually is a bit different. I will ask my doctor next time if it is related to OT. I usually take ibuprofen and it helps so I can continue a...

I saw Dr. Matsumoto recently as a patient in Rochester. (He was the person who spoke to us OT people last spring at our meeting in Rochester) He said hello to everyone and said he very much enjoyed meeting everyone. He said he learned much from listening to us. Dr did another EMG and noticed that wh...

Dear Helsan,
Were you the lovely woman in Rochester with the British accent? If so, I have tried to contact you. How are you doing? Are you still a member of this forum?
I have an appointment with Dr. Matsomoto in Dec, 2008. I wonder how that will go.
Lorie M

Susan, Interesting about connection with thyroid disease. My mother, 2 sisters, 1 nephew, 1neice have been diagnosed with thyroid problems. So far none of them have experienced OT. The nephew is starting to have problems walking and has essential tremors. I may suggest he be tested for OT. Although ...

So it did but what happened to the LONG one I submitted yesterday???
Lorie M

Hello everyone,
I do reply at times but it must go to the secret place in the sky as I must not do it correctly. Computers are not my best form of communuication. I can read the postings and thus become a reader and not a poster!

This is a test to see if it actually shows up somewhere.
Lorie M

Linzi, The first time I can recall feeling any effects of OT was when I tried to snow ski. I had not been skiing for many years. The boots made me bend at the knees and bend forward. Both bad for tremors to start for me. It was not a good experience.I thought I was just old and out of shape. (still ...

Dear Ian, Welcome to the forum. It is a great way to express ourselves with people who have had similar experiences. Unfortunately the medicines for OT did not help me and only made the symptoms worse. I am on lorazepam which is usually prescribed for anxiety and muscle relaxation. I have not had an...