The Orthostatic Tremor Forum (archive)

Hello, Dr. Torres made up 3 Groups and people could pick whichever Group they want to be in: Group 1 - arrives Sunday and leaves after 5pm on Wednesday Group 2 - arrives Tuesday night and leaves after 5pm on Friday Group 3 - arrives Sunday and stays all week until after 5pm on Friday. You MUST tell ...

Hello, If you sent your info into the designated person AND advised what Group you want to be in, that is all you have to do. You will automatically be accepted into the research by doing this. You can go ahead and make your arrangements. Dr. Torres will contact you with the "TIME/TIMES" o...

Hello Cheryl,
Thank you for posting and keeping others informed which is so important. Are you aware of the Omaha research coming up this September - there is a lot going on there and you can read about it on this website and forum. I hope you will consider attending.

Peggy

AGENDA FOR RESEARCH AND EXTRA ACTIVITIES PLANNED FOR OMAHA Sunday, September 24: People will be arriving that are in Group 1 and Group 3 and staying at the Element Hotel which is in a location called Midtown Complex. Monday, September 25: Appointments as the doctor will be advising you, at the hosp...

Hello, Anyone that is interested in receiving information on this can now send in this information to one of the 3 following OT helpers: Name - Complete address - Home phone number if applicable - Cell phone number if applicable - Email address - If your LAST name starts with the following letter of...

I was just thinking that I may not have mentioned that Dr. Torres-Russotto has stated that anyone that has OT will be accepted into the research.

Just thought I should advise on this and my apologies for not mentioning it sooner.

Peggy

I know from other trials - like the one we participated in - in Omaha, Dr. Torres explained that the researchers do not and cannot release information until certain things are done. One thing also is that the researchers want to write up papers on this research and that also takes time. Nothing happ...

I don't know about "when" we will get results. I do know that I have asked Dr. Torres-Russotto, who is heading up the research in Omaha in September if he will talk about this. He does know the doctor that was in charge of the Florida Clinical trials and hopefully he can answer some questi...

I have been wondering how Elizabeth made out with this?

Thanks
Peggy

Hello Elizabeth,
Thank you for posting this and good luck to you with this procedure. It is great to get feedback from people on this.
I will look forward to hearing from you regarding your results.

Peggy

Hello all, I have been in touch with Annette over this and will arrange for her to give a presentation - possibly more than one so that anyone interested can hear about this in Omaha in September. I have also contacted Dr. Torres about this. He is aware of this procedure and I asked if he will talk ...

Hello everyone, We will be having two planned dinners the week of the research and meeting - one on Tuesday, Sept. 26 and one on Thursday, Sept. 28. This will accommodate all three Groups of people attending and people can attend one dinner or both - whatever they wish - we will get names later. We ...

Hello Annetta,
Thank you for posting this information. Everyone should know about this also. Annetta has been in touch with me and she will be presenting this information at the Omaha research meeting this September and everyone attending can hear her story and ask questions.

Peggy

Hi Warren, Thank you SO MUCH for posting this (and to Jeff for helping). People will really appreciate learning about this. I will also tell everyone that I have been in contact with Dr. Torres about this. He advised that he knows Dr. Shukla who is in charge and will be talking to her about this. Sh...

A personalized Web site for OT Group 2017 occurring (September 23, 2017 - September 29, 2017) has been created for you. Guests can access the site to learn more about the event and to book, modify, or cancel a reservation from March 9, 2017 to September 30, 2017. Below you will find the appropriate ...