Search found 357 matches

by Betty
Fri Aug 10, 2018 3:32 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: what say others?
Replies: 153
Views: 36116

Re: what say others?

Dear Di Di, So good to hear from you and to know you are doing as well as YOU can, at this point. I am happy to hear Gloria and I were helpful to you when you first learned you have OT. It is a scary time for all of us, I think. But...as time goes on, and one learns to accept what we have and then l...
by Betty
Wed Aug 08, 2018 4:34 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: what say others?
Replies: 153
Views: 36116

Re: what say others?

Hello Di Di, It has been a VERY looooong time since I have posted, but I do check in to read what others post. You do seem to stay busy, which is good. I find I am not as busy as I used to be. We all know OT is progressive and with each year I realize just how true this is, at least for me. I am now...
by Betty
Sun Jul 01, 2018 9:56 am
Forum: OT - Surveys
Topic: Survey # 1 - Thoughts, Questions, Feedback
Replies: 3
Views: 5790

Re: Survey # 1 - Thoughts, Questions, Feedback

I would personally like to congratulate the team of P. Whitta, M. Muir, P. Cirincione, and A. Muir for their outstanding job of obtaining all the information in the survey and putting it into such an excellent report. I would also like to thank Jeff for his outstanding job of putting all the informa...
by Betty
Wed Jun 06, 2018 4:04 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Triggers for tremors
Replies: 8
Views: 5603

Re: Triggers for tremors

Hello all..... Has anyone noticed after some sort of trauma their tremors are much worse? Also, I have noticed when I must take a new medication for an illness, my tremors are worse, as is my ability to walk. I am just getting over a bout of diverticulitis and my ability to walk is almost impossible...
by Betty
Tue Mar 06, 2018 2:37 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 55520

Re: Florida clinical trial

Hello all, I have read with great interest all the postings of the FL Clinical Trial. I, too, live in FL, and did try to participate in the trial but was not acceptable due to age. I was so elated as I read the post from Warren, but as time went on, you digressed back to where you were before the tr...
by Betty
Sun Sep 10, 2017 11:52 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Hello from Florida! I thought I would update you on what is happening as Irma comes ashore here in Florida. It is coming up the west coast and we live on the east coast in Melbourne ~ near Cocoa Beach. We thought it would come up the east coast or the middle of he state, but it moved west and now th...
by Betty
Sun Aug 27, 2017 2:25 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Hello all, I have had OT approximately 23 years, but that is when I first noticed tiring when standing. That was in 1994. I feel it started a couple of years before that. When it first started, I could stand an unlimited amount of time, but would feel tired and begin to feel weak. After a few years,...
by Betty
Tue Aug 01, 2017 2:24 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Balance problems
Replies: 11
Views: 3534

Re: Balance problems

Hi everyone, Thought I would jump in here regarding balance problems; I have them as well.....but I also have vertigo. However, I have had that all my life and it is just part of me. I know the difference between the two. Regarding falling; I have fallen twice in the past year. :o The first time had...
by Betty
Sun Apr 30, 2017 10:16 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 55520

Re: Florida clinical trial

Hello everyone, When I heard of the trials to be held at the U of F; I got all the information I could, because I live about 2 1/2 hours drive from Gainesville. When I got more information, I found I did not qualify for the trials due to age. I was disappointed because Dr. Torres has me in his trial...
by Betty
Fri Feb 24, 2017 4:08 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12194

Re: 2017 September OT Meeting/Research

Hi Mike and Peggy,

Good question, Mike.

Peggy this timeline does help, and appears it would be sufficient time to make plans.

Thanks,
Betty
by Betty
Mon Feb 20, 2017 3:54 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Hello Alibaba, So nice to hear from you, but sorry to hear you are in the same position as I; very difficult to walk now. I can get around in the house, using walls for stability (wall walking as I say), and using furniture for balance as well. How long have you had OT? I have had it for about 24 ye...
by Betty
Sun Feb 19, 2017 1:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Hello Gloria, I thought I would try to give an update on how I get through my days with OT. It is not easy, but life isn't always easy. We do what we can and try not to dwell on the things we are no longer able to do. My standing time is seconds to nil. My legs are weak and I have great difficulty w...
by Betty
Fri Jan 20, 2017 2:34 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Dear Gloria, Yes, we have been friends for many, many years now, and you are correct, I seem to be different in many ways. My legs don't react as most with OT, and I know I have OT after being diagnosed by Dr. Pullman. He gave me all my records and charts. However, my legs seem to have a mind of the...
by Betty
Thu Jan 19, 2017 4:19 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 12194

Re: 2017 September OT Meeting/Research

Hi Peggy, I have one question; in your information note you wrote: "If you know at this point that you are definitely planning on attending regardless of whether you are accepted into the research, you can advise your contact person of this." Since I was accepted for the last research stud...
by Betty
Thu Jan 19, 2017 12:03 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194193

Re: How is everyone?

Hello! This is for Gloria, Fiona, Lynette and Nancy; I am a little late responding to your comments regarding the temperature you feel most comfortable sleeping. I guess I am STILL the 'odd one out'! :roll: I seem to be opposite to all of you; I must have my legs (from knees down to feet) covered an...