Search found 103 matches

by MikeS
Tue May 20, 2008 5:44 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Stopping Neurontin
Replies: 3
Views: 2637

Re: Stopping Neurontin

Hi Everyone Im now down to 300mg of Neurontin a day and tomorrow I take my last pill.I have to say I feel so much better My head is clear I feel much happier I have started losing weight I can play the piano ..which must be a miracle because I couldnt play a note before I started the pills ...sorry ...
by MikeS
Tue May 13, 2008 2:41 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Stopping Neurontin
Replies: 3
Views: 2637

Stopping Neurontin

Hi Everyone I went to visit my neuroligst today and after much discussion I have decided to stop taking Neurontin.I have been on it ever since I was diagnosed.I have suffered bad side effects ...anxiety ,weight gain,confusion .The other reason is and those of you that have met me will understand mor...
by MikeS
Mon Apr 28, 2008 10:36 pm
Forum: 2008 OT Meeting Rochester MN USA
Topic: Meeting
Replies: 8
Views: 5963

Re: Meeting

Hi everone. I would jut like to say how wonderful was to meet and talk to you all at the the inauragral meeting of OT community.The presentation was excellent and the round table discussion was so enlightning .I came away with a feeling of being part of a family.Gloria you are a very special person ...
by MikeS
Sat Apr 19, 2008 8:52 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Interesting New Diagnosis
Replies: 13
Views: 4472

Re: Interesting New Diagnosis

Stella
My doctor thinks there is a connection...did you check out the website link? It refers to Orthostatic Tremor.
Mike
by MikeS
Sat Apr 19, 2008 10:38 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Interesting New Diagnosis
Replies: 13
Views: 4472

Re: Interesting New Diagnosis

Hypo sorry :D
by MikeS
Fri Apr 18, 2008 5:17 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Interesting New Diagnosis
Replies: 13
Views: 4472

Interesting New Diagnosis

Hi I went to the clinic to day re another of my conditions.We got chatting about my 'teddy bear legs' My Doc was interested,hes not a neuroligist ,he took my BP and then asked me to stand up and then took BP again and said it was lower when standing which is unusual it is meant to be higher .He diag...
by MikeS
Tue Apr 08, 2008 4:46 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: A little help needed
Replies: 6
Views: 2929

A little help needed

Hi Ive been on Gabapentin for a week now and my dose is now 900mg a day (1200 next dose) I am having side effects of feeling very tired, confused then I feel ok for a few hours.I am having trouble concerntrating and can only drive at certain times.I seem to be able to stand a little longer but I don...
by MikeS
Sat Apr 05, 2008 4:41 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Thank you for the diagnosis
Replies: 4
Views: 2459

Re: Thank you for the diagnosis

Hi Joan
Welcome I am new to this as well.Its amazing how we have all managed to cope over the years.
What I have found intersting is the amount of friends and aquaintences that didnt even know I couldnt stand for more than a few seconds.
Keep smiling
Mike :D
by MikeS
Thu Apr 03, 2008 6:09 pm
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 19353

Re: post your product reviews here.....

Hi I have purchased a light weight folding fishing seat with telescopic legs....But havent used it yet I was only diagnosed a couple of weeks ago...Im still into finding a wall to lean on .I tried a cane but found all it did was move the tremor to my arms as well. I will use the seat Im sure but its...
by MikeS
Thu Apr 03, 2008 11:39 am
Forum: OT- "THINGS" that help
Topic: Cain and Abel
Replies: 6
Views: 6349

Re: Cain and Abel

Hi I have purchased a light weight folding fishing seat with telescopic legs....But havent used it yet I was only diagnosed a couple of weeks ago...Im still into finding a wall to lean on .I tried a cane but found all it did was move the tremor to my arms as well. I will use the seat Im sure but its...
by MikeS
Mon Mar 31, 2008 7:41 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Some Questions
Replies: 8
Views: 3001

Re: Some Questions

I am intending on coming to the meeting in April because I live in Spain (but am English) there is very litle known about the condition
Today I bought a collapsable fishing stool with telescopic legs and have already found it very useful.I would appreciate any other tips that might help.
by MikeS
Fri Mar 28, 2008 6:19 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Some Questions
Replies: 8
Views: 3001

Some Questions

I have read the board the best I can but as some of the stuff is going back a couple of years I wondered if there were some of you that can answer some questions Is there any medication being used at the moment that helps OTC that doesnt have adverse side effects? Is OTC reconised as a disabilty? Th...
by MikeS
Thu Mar 20, 2008 11:04 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Newbie
Replies: 5
Views: 2524

Newbie

Hi My name is Michael 58yrs old .I live in Spain. After about 8/9 yrs of suffering from this peculiar disorder I was finally digonosed on Monday .The neuroligist was quite excited as I was the first case he had ever come across.I to was pleased as I know had 'something' with a name instead of this s...