Search found 490 matches

by admin
Mon Jul 16, 2018 4:46 pm
Forum: Research Papers
Topic: OT RESEARCH: Is your walking impaired?
Replies: 0
Views: 5046

OT RESEARCH: Is your walking impaired?

Gait disturbance in patients with orthostatic tremor: K.Möhwald, M.Wühr, K.Feil, F.Schenkel, C.Schlick, K.Jahn, M.Dieterich, Brand, R.Schniepp Introduction Orthostatic tremor (OT) is a rare disorder of unclear etiology characterized by a 13–18 Hz tremor of the legs while standing with resolving sym...
by admin
Thu Jun 14, 2018 7:11 pm
Forum: OT- "THINGS" that help
Topic: Being an advocate
Replies: 1
Views: 2262

Re: Being an advocate

Hi Roberta

Well done! and great ideas

best regards
by admin
Mon Apr 30, 2018 8:39 am
Forum: Research Papers
Topic: Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel
Replies: 13
Views: 13593

Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel

Complete Resolution of Symptoms of Primary Orthostatic Tremor with Perampanel María Ruiz-Julián1, Jorge Luís Orozco1 & Alexandre Gironell1* 1Movement Disorders Unit, Department of Neurology, Hospital de la Santa Creu i Sant Pau, Autonomous University of Barcelona, Catalonia Background: Primary ...
by admin
Sat Apr 14, 2018 9:19 pm
Forum: UNMC - OT Research News
Topic: Research reports from the OT research at the University of Nebraska Medical Center
Replies: 1
Views: 3646

Re: Research reports from the OT research at the University of Nebraska Medical Center

New Research from the University of Nebraska Medical Center OT Research: Comprehensive, blinded assessment of balance in orthostatic tremor; Danish Bhatti, Rebecca Thompson, Yiwen Xia, Amy Hellman, Lorene Schmaderer, Katie Suing, Jennifer McKune, Cynthia Penke, Regan Iske, Bobbi Jo Roeder, Ka-Chun S...
by admin
Sat Apr 14, 2018 9:05 pm
Forum: Research Papers
Topic: Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor - UNMC
Replies: 0
Views: 4921

Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor - UNMC

New Research from the University of Nebraska Medical Center OT Research: Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor Danish Bhatti, MD, Rebecca Thompson, MD, Amy Hellman, MD, Cynthia Penke, RN , John M Bertoni, MD , Diego Torres-Russotto, MD* Orthostatic ...
by admin
Sat Apr 14, 2018 9:04 pm
Forum: UNMC - OT Research News
Topic: Research reports from the OT research at the University of Nebraska Medical Center
Replies: 1
Views: 3646

Research reports from the OT research at the University of Nebraska Medical Center

New Research from the University of Nebraska Medical Center OT Research: Smartphone Apps Provide a Simple, Accurate Bedside Screening Tool for Orthostatic Tremor Danish Bhatti, MD, Rebecca Thompson, MD, Amy Hellman, MD, Cynthia Penke, RN , John M Bertoni, MD , Diego Torres-Russotto, MD* Orthostatic ...
by admin
Sat Dec 16, 2017 12:45 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: EMG readings
Replies: 3
Views: 3124

Re: EMG readings

It’s interesting that you would be considered for DBS without first being confirmed as having OT. Has your group been successful with DBS and OT and possibly they could put you in touch with those people?
by admin
Fri Oct 20, 2017 12:26 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 55595

Re: Florida clinical trial

Update from Warren - Subject: OT 8-month Update. On Feb.7 & 8, 2017, I had the clinical trial at the Univ. of FL in Gainsville. Initially it really helped. The treatment effects are slowly wearing off. Now I have trouble standing still and always want to lean on something of sit down. I avoid do...
by admin
Sun Oct 08, 2017 8:30 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241319

Re: New to the forum? post a quick introduction

Click on the link below to read the report from the 2017 OT Meeting (thanks Pat for the great report!)

Click to read the UNMC Orthostatic Tremor Research and Meeting 2017 report
by admin
Sun Oct 08, 2017 8:28 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: UNMC Orthostatic Tremor Research and Meeting 2017 Report
Replies: 1
Views: 3930

UNMC Orthostatic Tremor Research and Meeting 2017 Report

Click on the link below to read the report from the 2017 OT Meeting (thanks Pat for the great report!)

Click to read the UNMC Orthostatic Tremor Research and Meeting 2017 report
by admin
Thu Sep 28, 2017 10:08 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: NEWS FROM THE 2017 Omaha meeting -
Replies: 2
Views: 4345

NEWS FROM THE 2017 Omaha meeting -

A news article with video has been posted on the KETV Omaha news website: LINK TO ARTICLE and VIDEO UNMC leads international research on Orthostatic Tremor University of Nebraska Medical Center hosted the largest international study on Orthostatic Tremor, a rare, debilitating disease that makes peop...
by admin
Thu Sep 28, 2017 10:06 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241319

Re: New to the forum? post a quick introduction

A news article with video has been posted on the KETV Omaha news website: LINK TO ARTICLE and VIDEO UNMC leads international research on Orthostatic Tremor University of Nebraska Medical Center hosted the largest international study on Orthostatic Tremor, a rare, debilitating disease that makes peop...
by admin
Thu Aug 24, 2017 12:54 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241319

Re: New to the forum? post a quick introduction

Hi Vanna - With thousands of posts on the forum it can be challenging. The fastest method to research anything on the forum is to search on a word. If you are using a desktop or laptop computer you can click on the magnifying glass in the topmost menu. Then type in the word and hit return. If you ar...
by admin
Thu Aug 24, 2017 10:31 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 241319

Re: New to the forum? post a quick introduction

Hi Vanna Below are links to 3 of the topics about vision, prism glasses and OT: https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=1&t=800 https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=1&t=784 https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=1&t=709&start=30