The Orthostatic Tremor Forum (archive)

Hi to everyone I believe my OT symptoms were exacerbated by having a full anaesthetic for an operation almost three years ago. While I had complained to the Doctor a couple of times previous to the operation about having a strange feeling in the tops of my legs, I was able to walk and stand without ...

All the best Golfnut with your meeting with Dr Bain. I know how you feel about living in a small country where there is not the same resource/knowledge to assist with the condition. Coming from New Zealand where there are very few Neurologists, I just feel grateful that the first Neurologist that I ...

Hello Mike I too wish my husband and I could have attended next month's meeting, but a trip to the States for us is a 'major' requiring plenty of planning. Work commitments this year unfortunately do not allow time away in October. I do feel isolated living in New Zealand with this condition, more s...

Hi Golfnut I can relate to some of your experiences. When we were on holiday in South Africa for a month late last year, my legs were very good. We walked quite some distances and as long as I got to sit down after, I found my legs were not so tired. We also thought the warmer climate might also hav...

Hello Golfnut Muscle fatigue is certainly something that I suffer from - in fact fatigue, fullstop!! As we are currently in the middle of a very wet, windy and cold winter here on the Island I cannot get out for my regular walks on the beach to try and keep my legs functioning normally (or as normal...

Thanks Dave for that link. As I was diagnosed less than a year ago with OT, and live on a remote Island 800 kms east of New Zealand, I rely totally on the web for obtaining information on the condition. The link answered a few more unanswered questions. As I also have mild ET of the head, I also fou...

Hi Everyone Kathy brings up some interesting points. I find walking on uneven ground very uncomfortable. While holidaying in South Africa late last year we went on a couple of nature reserve walks. I used a hiking pole which gave me an "extra leg" and support, especially going downhill. Co...

Hello everyone - My name is Lynetteand I am in my early 50's. I live in a very isolated part of New Zealand called the Chatham Islands, 800km east of the South Island of New Zealand, which means getting to Specialists is a journey and a half. I was diagnosed with OT (and a mild Essential Tremor in t...