Search found 490 matches

by admin
Mon Jul 17, 2017 4:49 pm
Forum: OT- "THINGS" that help
Topic: SmartPhone apps and the OT tremor... (update)
Replies: 10
Views: 14737

Re: SmartPhone apps and the OT tremor... (update)

Hi GardenLily It's unfortunate that the app developers have stopped updating LiftPulse. There are a couple other tremor applications available. In my opinion these applications had the most potential for people to help define or at least point in the correct direction. To help decide whether it may ...
by admin
Fri Jun 09, 2017 7:43 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240850

Re: New to the forum? post a quick introduction

Hi Warren

Thank you for the update, glad to hear that you are doing well. For anyone wanting to read Warrens full report you can find it > HERE
by admin
Wed May 31, 2017 8:18 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240850

Re: New to the forum? post a quick introduction

Hi May Welcome to the forum. For more information about the Nebraska research and meeting you can click on the following link: Omaha Nebraska OT Meeting and Research and email Nina – ndavis6@sbcglobal.net She can give you additional information. Additional information about the meeting, hotel, dinne...
by admin
Mon May 29, 2017 11:52 am
Forum: Research Papers
Topic: Orthostatic Tremor: An Update on a Rare Entity
Replies: 3
Views: 4832

Orthostatic Tremor: An Update on a Rare Entity

Orthostatic Tremor: An Update on a Rare Entity. A review of 219 research papers on Orthostatic Tremor. Authors - Julián Benito-León and Ángela Domingo-Santos Link to full article OT is a rare and singular movement disorder that is characterized by tremor of the legs and trunk, and is present on stan...
by admin
Tue May 23, 2017 7:03 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Googling key words did not find your wonderful site
Replies: 1
Views: 2644

Re: Googling key words did not find your wonderful site

Hi Mark Glad that you found the website! Especially today because the site has gone through several rounds of updates today. The site is google friendly, but the words may need to be more specific. For example if you added "standing" along with your words it's likely that it would appear o...
by admin
Wed May 17, 2017 4:10 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240850

Re: New to the forum? post a quick introduction

Hi Vanna

So sorry this is a difficult time, hopefully this forum and its members will be of some support to you.

Wishing all the best,
by admin
Tue May 16, 2017 8:31 am
Forum: Research Papers
Topic: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
Replies: 7
Views: 3911

Re: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor

A new research paper that describes the possible reason why SCS helped with Parkinson's disease: “Based on recent evidence, we argue that neurological disorders such as PD can be broadly classified as diseases emerging from abnormal neuronal timing, leading to pathological brain states, and that the...
by admin
Fri May 12, 2017 9:30 am
Forum: Research Papers
Topic: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
Replies: 7
Views: 3911

Re: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor

This is an interesting article about a researcher that has created a device to help a friend with Parkinsons. It reminded me of the small successes that have reported recently about the use of spinal cord stimulation and OT. “It’s like injecting white noise into that feedback loop in order to disrup...
by admin
Thu May 11, 2017 7:36 am
Forum: Research Papers
Topic: A blinded assessment of balance in patients with orthostatic tremor
Replies: 0
Views: 4595

A blinded assessment of balance in patients with orthostatic tremor

A blinded assessment of balance in patients with orthostatic tremor Danish Bhatti1, Rebecca Thompson1, yiwen xia1, Amy Hellman1, L Schmaderer2, Cindy Penke3, Regan Iske1, John Bertoni1 and Diego Torres-Russotto1 Objective: The objective of this study was to assess the balance of patients with ortho...
by admin
Sun May 07, 2017 8:11 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: NORD statement on the American Health Care Act
Replies: 0
Views: 16589

NORD statement on the American Health Care Act

The National Organization for Rare Disorders Issued a Statement on the Passage of the American Health Care Act: “Today the House of Representatives passed American Health Care Act (AHCA). We are very disappointed the House pursued and passed this legislation, and we will continue to do everything we...
by admin
Fri Apr 28, 2017 1:38 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Cannibis Oil
Replies: 7
Views: 6051

Re: Cannibis Oil

Below is a response from Catherine - I am also interested in the subject of cannibis oil in treatment of OT. I was diagnosed with OT in 2018 . I am now on a cocktail of Neurontin and Xanax and despite this my disability has worsened considerably. A few years ago I went on a holiday to Amsterdam with...
by admin
Thu Apr 13, 2017 11:50 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: Information regarding OT meeting and Research - Omaha 2017 - who to contact
Replies: 0
Views: 5763

Information regarding OT meeting and Research - Omaha 2017 - who to contact

Information regarding OT meeting and Research - Omaha 2017 As we advised in our year end letter, Dr. Diego Torres-Russotto and his team from the Nebraska Medical Facility will be conducting their 3rd research studies this September 25 – 29, 2017 in Omaha, Nebraska. Just to confirm also – all expense...
by admin
Sun Apr 09, 2017 9:32 pm
Forum: UNMC - OT Fund Updates
Topic: UNMC - Update 4/6/2017
Replies: 1
Views: 2072

UNMC - Update 4/6/2017

The balance in the UNMC - OT Fund as of 4/6/17 is $32,445.00.
by admin
Thu Mar 23, 2017 9:27 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: First Mayo meeting
Replies: 3
Views: 3017

Re: First Mayo meeting

Hi Patty You are correct April 28, 2008 - Below are a couple links to discussions and the original video of the meeting - https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=23&t=329 https://www.orthostatictremor.org/phpBB3/viewforum.php?f=12 Wishing you all the best success with your surge...