The Orthostatic Tremor Forum (archive)

Hello everyone, Mike - I loved the video and song and couldn't help but notice that in the one picture you had your shoelaces matching your shirt - way to go! Good to see you have that fashion sense - of course I saw your flashy shoes in Houston so I know! It was wonderful to see my OT friends in Ho...

Hello everyone, I just received an email from Dr. Torres-Russotto giving me some news on the research and also an update on the request I had put in to him to put together one page regarding OT that would be on their hospital’s website. Once this up and running, Jeff will link this page to our webs...

I had phoned Gloria to see how her prism appointment went so heard about her glacoma and hopefully she can get this looked after and then she can proceed again looking into prisms. Here she is, not a young woman but never giving up trying to move ahead trying to look into getting something to possib...

So good to see everyone sharing info on this and reporting on the forum about their results. I am also keeping in touch with someone else who is going to check this out and encouraging everyone I am in contact with on this to do this.

Peggy

Very glad to hear people are checking this out - it really is important!

Because I am such a distance from either doctors, I am waiting to get more feedback and then will probably go to see one of them - will decide once I get this feedback.

Peggy

Hi there, Dr. Torres recently returned from an international meeting for Neurologists dealing with Movement Disorders and he reported briefly to me on this so I just wanted to share it with you. Peggy These are his comments: The meeting went well. We presented two posters of the OT study. You can sh...

Hi there, Dr. Torres recently returned from an international meeting for Neurologists dealing with Movement Disorders and he reported briefly to me on this so I just wanted to share it with you. Peggy These are his comments: The meeting went well. We presented two posters of the OT study. You can sh...

Hello everyone, This is a follow-up to my previous email. There were a couple of important things I neglected to think of when sending it. One was that some of you never got to hear the prism presentation. The second was that I was trying to keep the email short and to the point by telling you the o...

Hello everyone, I am reporting on my experience with prism glasses and I will give you my suggestion on what we should do next. I am also giving you some brief info on the 3 OT people who have had very good luck using prism glasses to help their OT as this will make you more informed and may be usef...

This is very interesting. Maybe an OT person will initiate some contact with the scientists involved in this at the Salk Institute and see if they are interested in studying us OT people.

Peggy

Hello everyone, I have been waiting until I had some information to share with you about my experience with looking into getting prism glasses. As I have discovered, it is a learning experience for myself and my optomotrist. I am seeing my optomotrist as I do not have a specialist within a reasonabl...

This is quite encouraging - I hope everyone will continue to support this fund set up to help us.

Peggy

Thank you Mike - always great to hear your positive comments. Glad Las Vegas worked out.....

Peggy

Hello everyone, We only had one business meeting in Omaha; it was held right before our dinner one night to maximize the amount of people in attendance. A suggestion had been put forward prior to this meeting that since we have such a small base of potential donors, we might consider concentrating o...

This is terrific Jeff - thank you to you and Sue Boyd for putting this together.
Peggy