The Orthostatic Tremor Forum (archive)

Hi Everyone
Have any of you given any thought about another meeting I would like to know .
The last one was fantastic and I belive if the numbers are right I might be able to get some sponsership.
Keep Smiling
Mike

This is a post from Richard in the UK we are testing ways to get everything posted here to. Some stuff will not be the same as USA or other countries but supermarket shopping is a real pain anywhere so any tips will be useful. Morning all - If, as I hope, we can become a 'force for change' in the UK...

Hi Patty I have had a meeting with Max Clifford (publicist) re getting some publicity .As yet nothing has come of it but I will try again.All the emails we are getting from the UK are so intersting and imformative that I would love to see them here.If any of the UK group do read this please post on ...

Hi Everyone Gloria its with the help of everyone that this post has taken off .Nothing now seems trivial anymore we are finding out so much ,weight gain kneeling,excersise,etc etc.This is a 'family' site and in the grand scheme of things we are a small and close family as I always say you and everon...

Hi Everyone I have been in contact with Richard in England and he has been getting a lot of info about vitamin B12 .Hopefuly it will all appear here soon. Another question I have now started to get a lot of aching in my legs especially after walking when it starts I begin to stumble and have to find...

Hi Everyone As well as parkinsons my dad also had a thyroid problem I remember him having an operation to remove or do something it was over 40yrs ago. We are doing a great job here of info sharing I wonder if there is someone who could collate this info and do something with it? Any volunteers ? I ...

Hi Everyone The hereditary question is one I have asked as well and was given the same not enough studies have been done.So lets do our own 'study'. How many of us have had a parent that had a 'conditon' My father had Parkinsons, coincedence?I know its not OT but any information we can throw into th...

Hi Dave
I would suggest you find a firm of carpet fitters and explain your situation I am sure they would help you.
Mike

Hi Joan Sounds like your vacation was fun.I dont think I could do that must have be hard for you. Your last line made me think ,the bit where your husband says 'limp'.The trouble with OT is that when you walk it gets easier so we all have this problem of explaining or not why we can get out of our w...

Hi Lorrie Welcome back from your trip round cyber space. I am pleased to hear you went to the fair.Do you have a wheelchair it is such a great help for those types of trips May I suggst a parosol to shade you from the sun .The whole trip then becomes a pleasnt outing,get your little card out and jum...

Hi All It is incredible that we all seem to suffer the same problems,I to am stumbling a lot more when I walk ,my balance in the dark is terrible I tend to launch my self and hope for the best.Most of the time when going out I tend to go to 'safe' places where Im known or I know there is seating or ...

Hi Dont you all be going quiet on me things are happening and you arent saying..lol I am just going off to the local Town Hall to try and sort out a disabled badge for my car .This not going to be easy as my Spanish isnt brilliant and their rules and regulations are as complicated as jig saw puzzle ...

Hi Kaylie Good for you ! Insurance companies are notorious for just saying no to everything or looking for a clue not to pay.The trouble with our disorder is that its not on any 'list'.It takes a fighting spirit to take them on and to win must give you such a sense of achievment. Keep smiling Regard...

Hi Susan Not only do we understand we care as well.As I said I dont know anything about American employment law and to complicate further I am sure it differs from state to state.I am wondering If out there somewhere in our midst there is a lawyer...or if someones son or daughter is a lawyer that mi...

Hi I decided today to go swimming something I havent done for a long time as I am afraid Greenpeace might see me and think Im a beached whale and try and put me back into the sea.Anyway I could stand in the pool my legs still felt like there was a slight shake but I could stand I didnt feel the need...