The Orthostatic Tremor Forum (archive)

So very happy for you Harry that you also have found Lyrica works for you. I have been taking it for 14 months, thanks to a new neurologist. I take two 75mg mornings only and I also am coping better on Lyrica than Neurontin. But we must remember what works for some may not work for others. What I ha...

Hello all OT friends, I posted on the forum about 12 months ago that I was on Pregablin (Lyrica) prescribed by my new neurologist. I take 150mg mornings only and it last 24 hours. I also have have more control and a bit longer standing time with this drug. :lol: also my weight is back to normal :win...

Hi to all OT's out there, yes I agree with Gloria that some of us long time members of this site should call in, I am a gunner, but never seem to get around to doing it. :( I read the site on a regular basis and keep up with new callers to the site. What concerns me so many are finding the site, als...

Hello my OT friends. I am reporting in regarding my trial on Pregabalin (Lyrica) 75 mg. I have been trialing this new medication for 4 months now (under my new neurologist) and have found it much better for me. I can stand longer and the tremors do not start as quickly, I also feel more in control, ...

Hello to all OT friends, I have something new to report. Firstly I have a new man in my life, he is a neurologist. What a delighful man he is, somebody who is really interested in OT, caring and knows about this OT site. When I visited him he had a neurologist from Malaysia sitting in with him, she ...

Hello All, Just to clarify for anyone who may not know - Gabapentin is the generic for Neurontin. (I used to take Neurontin, now take Gabapentin.) Regards, Anita Hi All, Just reporting about the dose of SAMe, its Homoeopathic Medicine, "SAMe" 25 mg, 25 mcg Folic Acid,25mg Vitamin B6,25mcg...

Hello I am Lorna replying to Kaylie and others regarding my second try at Neurontin (Gabapentin). I have now been on Gabaspentin for 6 weeks and am now taking 3300mg per day. As I said in my last posting I just could not stand anymore than a few seconds, I was really struggling. Now I am able to sta...

Hello to you all my OT friends, well just reporting in after recommencing Gabapentin. Now taking 2700 mg and going strong, much improved with my medication, and can stand much better than I had been able too. I have found that 8 hours between the doses is too long and start to tremor, so now taking ...

Hi to all OT friends. I want to report that I have had some wonderful success the past 4 days. I have suffered OT for 15 years and tried all the meds possible including gabaspentin, I was on 1600mg of gabaspentin about 2 years ago and felt little relief. The past 6 month my tremors were soooo bad I ...

Dear Connie, So pleased that you have found this site, its a wonderful comfort for those that have OT, and a great place to get support. In answer to your question regarding chemical sprays. I have been exposed to a number of chemicals during the past 20 years. I sprayed litres of Round-up on weeds,...

Hi Louise, I know where you are coming from when you talk about shopping. I carry a three legged fold up stool to the supermarket, the tolley supports me but have to sit at times, so hence the stool. BUT just to do normal shopping I have SWOLLOWED MY PRIDE and now use a Wheely Walker and it is just ...

I have read with interest Erika and Cheryls comments regarding the medication Ambrotose and decided to search the net to see what I could find out about it. Well there are many sites about Ambrotose to look at, I came across two that was of concern to me, one site was from Australia and the other si...

Hello to all OT's. I haven't posted anything on this new site but use to chat on the old site that Gloria started. I have been an OT suffer for about 15-17 years, and have tried most of the medications that seem popular, but I got no relief from any of them so have not been on medication for about 2...