The Orthostatic Tremor Forum (archive)

Hi Mike,

Do you have any further updates on your oxygen therapy? I, for one, am eager to try this and see if it helps me as well.
Any new information would be appreciated.

Thanks,
Betty

Hi Sherry, As you probably read in my blog to Trish, I have had OT for 25 years and know how you feel ~ so alone at times. But....this website is GREAT for making one feel better. We have all experienced what you have/are experiencing and will be as helpful as we can. If you have questions, just ask...

Hello to all: I was checking the website and found all of you today; I wish I had checked sooner and could address each of you, but I will start at the bottom with Trish. You wrote: I was diagnosed by my neurologist yesterday. I’m reading up on OT. Any comments on how to tell your family about your ...

Yes, I also have a problem trying to get around the dark. I have a small flashlight next to the bed, but the most help is a small night light in the bathroom . It is not bright enough to keep you awake, but enough light to help you see in the darkness. You might try that.

Betty

Hello Mike, I want to thank you and your lovely wife for sharing HER experience of living with someone with OT. It made me aware of what my husband must experience. I want him to read what your wife wrote and ask how he feels. Also, with OT friends like you, sharing your experience with oxygen thera...

Hi Mike,

As Peggy said, this is wonderful. I, too, will try to get the "okay" from my doctor.

Keep us posted; is it pure oxygen or a mixture? Will wait for your next post. Are you still tremor free?

Betty

Hi Mike, Thanks for the update. When you get the measurements or amounts of oxygen you were given, and post them, I will most certainly consult with me doctor and try to have him give it to me to try. If several of us do this, and have reasonable results, maybe neurologists may look closely into thi...

Hi Peggy,

I will be eager to hear what your family doctor has to tell you. I don't have a Neurologist either. I have been to so many and most don't know as much as I do about OT.

Stay positive ~ I know you will....and keep smiling!

Betty

Hello Peggy,

Do you plan to check with your doctor to see if he/she will allow you to use oxygen? Do you think you would need a script? If so, what would be the reason for the use?

I am eager to try this too.

Betty

Hello Mike,

I think all of us are waiting to hear your next update. I would love to try the oxygen and see if it works for me as well.

Do Keep Smiling!

Hi Mike, Thanks for your quick response. I do remember when you were in the hospital for your heart problem and found at that time the use of oxygen seemed to help your tremors. Now, this is the third time in the hospital and are having the same results; you are right, this can't be a coincidence. I...

Hi Mike,

I just viewed your video....it's amazing what oxygen has done for you. Like Peggy, I will question my doctor about its use.

How long is your session using oxygen? How often do you have these treatments?

Perhaps you have found something that REALLY helps; I do hope so.

Betty

Hello Peggy, I have intended to get in touch with you for some time now, but just don't get around to writing. After reading your post, I decided it was time to write. I do have full body tremors and have had for several years now. I have had OT for over 25 years. When we last saw one another, one w...

Hello Hester, My name is Betty and I live in Melbourne, FL. I have had OT for twenty-five years and it took me almost ten years to find out what I have. I saw nine neurologists and none had any answers for me except I should see a psychiatrist, which I did. He told me I didn't need a psychiatrist, w...

Hi Lorna, So good to hear your news regarding the drug, Sifrol. I have not heard of this one, but I have not seen a neurologist in several years now. I know I have OT Plus, so I just try to deal with it. I may try to find a good neurologist in my area and check out this drug for Parkinson's; certain...