Search found 490 matches
- Mon Jul 17, 2017 4:49 pm
- Forum: OT- "THINGS" that help
- Topic: SmartPhone apps and the OT tremor... (update)
- Replies: 10
- Views: 15848
Re: SmartPhone apps and the OT tremor... (update)
Hi GardenLily It's unfortunate that the app developers have stopped updating LiftPulse. There are a couple other tremor applications available. In my opinion these applications had the most potential for people to help define or at least point in the correct direction. To help decide whether it may ...
- Fri Jun 09, 2017 7:43 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 243434
Re: New to the forum? post a quick introduction
Hi Warren
Thank you for the update, glad to hear that you are doing well. For anyone wanting to read Warrens full report you can find it > HERE
Thank you for the update, glad to hear that you are doing well. For anyone wanting to read Warrens full report you can find it > HERE
- Wed May 31, 2017 8:18 am
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 243434
Re: New to the forum? post a quick introduction
Hi May Welcome to the forum. For more information about the Nebraska research and meeting you can click on the following link: Omaha Nebraska OT Meeting and Research and email Nina – ndavis6@sbcglobal.net She can give you additional information. Additional information about the meeting, hotel, dinne...
- Mon May 29, 2017 11:52 am
- Forum: Research Papers
- Topic: Orthostatic Tremor: An Update on a Rare Entity
- Replies: 3
- Views: 5410
Orthostatic Tremor: An Update on a Rare Entity
Orthostatic Tremor: An Update on a Rare Entity. A review of 219 research papers on Orthostatic Tremor. Authors - Julián Benito-León and Ángela Domingo-Santos Link to full article OT is a rare and singular movement disorder that is characterized by tremor of the legs and trunk, and is present on stan...
- Tue May 23, 2017 7:03 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Googling key words did not find your wonderful site
- Replies: 1
- Views: 2655
Re: Googling key words did not find your wonderful site
Hi Mark Glad that you found the website! Especially today because the site has gone through several rounds of updates today. The site is google friendly, but the words may need to be more specific. For example if you added "standing" along with your words it's likely that it would appear o...
- Wed May 17, 2017 4:10 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: New to the forum? post a quick introduction
- Replies: 1015
- Views: 243434
Re: New to the forum? post a quick introduction
Hi Vanna
So sorry this is a difficult time, hopefully this forum and its members will be of some support to you.
Wishing all the best,
So sorry this is a difficult time, hopefully this forum and its members will be of some support to you.
Wishing all the best,
- Tue May 16, 2017 8:31 am
- Forum: Research Papers
- Topic: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
- Replies: 7
- Views: 4040
Re: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
A new research paper that describes the possible reason why SCS helped with Parkinson's disease: “Based on recent evidence, we argue that neurological disorders such as PD can be broadly classified as diseases emerging from abnormal neuronal timing, leading to pathological brain states, and that the...
- Fri May 12, 2017 9:32 am
- Forum: Research Papers
- Topic: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
- Replies: 7
- Views: 4040
Re: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
Another recent article on SCS research and OT - http://onlinelibrary.wiley.com/doi/10.1 ... 12485/full
- Fri May 12, 2017 9:30 am
- Forum: Research Papers
- Topic: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
- Replies: 7
- Views: 4040
Re: Long-term follow-up of chronic spinal cord stimulation for medically intractable orthostatic tremor
This is an interesting article about a researcher that has created a device to help a friend with Parkinsons. It reminded me of the small successes that have reported recently about the use of spinal cord stimulation and OT. “It’s like injecting white noise into that feedback loop in order to disrup...
- Thu May 11, 2017 7:36 am
- Forum: Research Papers
- Topic: A blinded assessment of balance in patients with orthostatic tremor
- Replies: 0
- Views: 4685
A blinded assessment of balance in patients with orthostatic tremor
A blinded assessment of balance in patients with orthostatic tremor Danish Bhatti1, Rebecca Thompson1, yiwen xia1, Amy Hellman1, L Schmaderer2, Cindy Penke3, Regan Iske1, John Bertoni1 and Diego Torres-Russotto1 Objective: The objective of this study was to assess the balance of patients with ortho...
- Sun May 07, 2017 8:11 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: NORD statement on the American Health Care Act
- Replies: 0
- Views: 16719
NORD statement on the American Health Care Act
The National Organization for Rare Disorders Issued a Statement on the Passage of the American Health Care Act: “Today the House of Representatives passed American Health Care Act (AHCA). We are very disappointed the House pursued and passed this legislation, and we will continue to do everything we...
- Fri Apr 28, 2017 1:38 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: Cannibis Oil
- Replies: 7
- Views: 6245
Re: Cannibis Oil
Below is a response from Catherine - I am also interested in the subject of cannibis oil in treatment of OT. I was diagnosed with OT in 2018 . I am now on a cocktail of Neurontin and Xanax and despite this my disability has worsened considerably. A few years ago I went on a holiday to Amsterdam with...
- Thu Apr 13, 2017 11:50 am
- Forum: 2017 Omaha OT Meeting and Research - Dr Torres
- Topic: Information regarding OT meeting and Research - Omaha 2017 - who to contact
- Replies: 0
- Views: 5944
Information regarding OT meeting and Research - Omaha 2017 - who to contact
Information regarding OT meeting and Research - Omaha 2017 As we advised in our year end letter, Dr. Diego Torres-Russotto and his team from the Nebraska Medical Facility will be conducting their 3rd research studies this September 25 – 29, 2017 in Omaha, Nebraska. Just to confirm also – all expense...
- Sun Apr 09, 2017 9:32 pm
- Forum: UNMC - OT Fund Updates
- Topic: UNMC - Update 4/6/2017
- Replies: 1
- Views: 2212
UNMC - Update 4/6/2017
The balance in the UNMC - OT Fund as of 4/6/17 is $32,445.00.
- Thu Mar 23, 2017 9:27 pm
- Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
- Topic: First Mayo meeting
- Replies: 3
- Views: 3029
Re: First Mayo meeting
Hi Patty You are correct April 28, 2008 - Below are a couple links to discussions and the original video of the meeting - https://www.orthostatictremor.org/phpBB3/viewtopic.php?f=23&t=329 https://www.orthostatictremor.org/phpBB3/viewforum.php?f=12 Wishing you all the best success with your surge...