The Orthostatic Tremor Forum (archive)

Hi all......I would like to think that all the shaking that we do can burn some calories....that is what I tell myself. When I am trying to stand especially in a line up I too get very warm and quite red in the face and afterwards my legs really ache for awhile. As for the hand shaking I don't notic...

Hi all.....just thought I would post a quick note. I didn't find Clonazapam really helped even though I was on it for a few years. I did find that is changed my personality somewhat (according to my husband) as he really noticed a difference when I was weaned off it. I have tried various other medic...

Wow Elizabeth.....good for you. Quite a feat!! You give us hope and inspiration......I need to get back walking especially with my poles. I always feel so much better when I do but sometimes other injuries get in the way. Hoping to start soon again and your story has inspired me to try again. Hope y...

Thanks for the info Jeff.....our thoughts are definitely with you Gloria .
Chris

Glad it worked Richard! I like the saying "just do it"....I will have to keep saying that to myself when things get a bit difficult and I want to back out of something.
Chris

Hi Richard I do indeed wish you luck when you are attending the wedding. Feel free to bring your stool....better to look a bit silly than be all stressed out about where you are going to sit and how long you can stand. My husband and I attended an outdoor wedding a few months ago and I definitely br...

I have not posted for quite awhile as I have been trying to get on with my life with OT. I too feel that is a very accurate description George. I am getting used to the looks when I have to sit down in church or during some cermonies. Even worse when I go into some of our local stores and use the po...

Hi Linzi Great to hear of your experiences....hang on to that Doctor! It is nice to hear that he is interested in you...my doctor just smiles and says he is at a loss what to do with me. We have tried quite a few meds and nothing really seems to work for me unless I take huge doses and then I have a...

Hi Pam I have tried Gabapentin a few times and lots of people seem to tolerate it well. I unfortunately had an adverse reaction to it when I increased my dose over 1200 mg per day. I mentioned what happened to me in the column in this forum called "Some Great Success". It really was annoyi...

Hi stillstanding! I have had benign postional vertigo for about 13 years now. Very annoying when I am having a full fleged attack. They appear to be worse lately and coming more frequent. I can only go about 4 - 6 weeks between attacks now and they usually last about 6 weeks. I have exercises that I...

Hi Stillstanding...congrats on your new baby. I find it very interesting that you had no symptoms while you were pregnant. I am afraid I am not much help as I did not have any problem with tremors when I was having my children. I have only had tremors for the last 8 or so years and only quite bad th...

hello everyone....just an update to let you know how I am doing. In the beginning I was doing exceedingly well. I slowly increased my dose of Gabapentin to 3200 mg daily. What a difference...I could stand for quite a bit longer and even though I could still feel the tremor it was manageable and my h...

Hi Candy
Nice to hear from you. I sent you a private email as I was having trouble with my messages bouncing...hopefully this one got to you and I will send you more.
Take care and talk to you soon
Chris

Hi everyone! This is a reply to Kaylie & Lorna. I have been reading with interest the information on various medications and how well they work. Meds affect us all differently but there maybe seems to be a common thread as well. Following the advice of a few I decided to ask my Doctor for higher...

Reply to Donna: Hi there! Interesting to hear about your vertigo problems. I am not sure if they are related but it could be a possibility. My Dr. does not think so. I have had various vertigo problems for about 12 years now. I sometimes get extremely bad attacks which can last only a few days or we...