The Orthostatic Tremor Forum (archive)

Jeff, Thank you for your kind words; they are from the heart. You have my permission to post anything you feel would be helpful to those who have found this wonderful site. You know how special Gloria is to me and having met you and Beth; you fall into that same category ~ very special people and a ...

Hello all: I am a bit late reading all the posts on this topic and found it very interesting that two of you feel your parents had OT. Both my parents had tremors towards the end of their lives, but that was BEFORE I knew I had OT. This started in 1994. I have two grown sons; the older one doesn't h...

Thank you Jeff, You are so good about following up on things; and I want to say ~ for all of us on this website ~ thank you for all that you do. I don't think you receive enough recognition for all that you do, and many may not know you encouraged Gloria to put "her story" on the web. Look...

Gloria,

I think it's wonderful you have nominated Dr. Russotto for the NORD "Hall of Fame". I know he appreciated it, now we will wait and hope.

Betty

Hello again, As you can see, Golfnut, everyone on this site enjoys your postings and the new things you have found and are experiencing. You give all of us such hope for the future! I only know Lynette and you DiDi through correspondence, but my dear friend, Gloria, I have known you for many years. ...

Hello all..... I may have to try to find a Homeopath here and see what he/she may have to offer. I have tried everything else and nothing seems to be working for me. My standing time is nil and my tremors are much worse ~ not what I want to report. I am so happy things are working out for you Golfnu...

Hello Golfnut, I have been reading, with much interest, your postings regarding being off ALL your medications and are doing so well with your homeopath. It must be wonderful to be able to play golf, stand on one foot to put your pants on and be steady. Something is working for you. I am so happy fo...

Hello Sue, I just read your post regarding the meeting you are getting together for our Australian OT friends. Having attended the very first meeting here in the United States at the Mayo Clinic in Rochester, MN., put together by Peggy, I can say it is so exciting to be able to actually meet and spe...

Hello Golfnut.... It's been a while since you have posted, but I see from this post you have been busy and traveling; good for you. You do seem to be able to do almost anything you want (with the exception of shopping, which is a bummer); but you continue to try. I will be interested to hear what yo...

Good morning Rhonda, Thanks for the explanation of OT plus; I too have ET. I am not sure all who have ET also have OT, but I do think most who have OT also have ET ~ guess that is a bit confusing. I feel most neurologist have never seen anyone with OT; and it is hard to diagnose. I saw eight neurolo...

Hello Rhonda, You have found a wonderful website and people who will be as helpful as possible to you. Gloria is our "rock" and one of the most positive people you will ever meet; she keeps all of us "on track". Your story is much the same as most of us; but you do have a few thi...

Hi Aaron and Jeff, The more I read about this, the more exciting it sounds. Jeff, you are doing an excellent job getting information out to us. Aaron, do you know of any neurologists who use one of the SmartPhones to test tremors? It's interesting because this evening I received an email from a frie...

Hi Jeff, I am still so excited to learn of this way to hear/see our tremors. I remember when I was tested by Dr. Seth Pullman in New York in 2002; he had me hooked up to all kinds of machines and I could see my tremors at that time, but didn't hear them. I have all those graphs, but no one can truly...

Good morning Jeff, Thank you so much for the information regarding "apps". It seems everyone has a smartphone, but we haven't upgraded; we still have a plain cell phone. I will try to find someone who has an iPhone who might download the app so I/we can hear my tremors. It certainly would ...

Hello all.... I am so intrigued with what I have been reading regarding being able to "hear" our tremors via either a Smartphone or iPhone. As I mentioned earlier, we don't have one, but may have to get one just to be able to "hear" my tremors. Since I am not that tech savvy, doe...