The Orthostatic Tremor Forum (archive)

George,

Is your appointment still April of 2015, or were you able to get an earlier date?

Betty

Hello George, I totally agree with Gloria ~ she is the expert here ~ going to the Duke Movement Disorder Center should be able to give you some answers you are seeking. Until we get a proper diagnosis, we are all searching. I was diagnosed December of 2003 and that's when I found this site. It has b...

Hi geandreas, Before I knew I had OT, I had a personal trainer; worked with her for three months, twice a week. During that time I was able to lift and press a lot of weight, yet when I would complete my session, I was so weak I could hardly walk. I didn't feel it was helping so I stopped. Some year...

Hello all, I just read the exercises Bobbi put on this site and several wanted to know how to print them for use. I just copied and pasted all of the exercises and pictures into my WORD program and printed. They came out great! You might try that; hope it works for you. I plan to start the exercises...

Dear Gloria, How dear of you to respond to my post, and thank you for your kind words. Gloria, you were the FIRST person I met with OT; I'm sure you remember our meeting here in FL many years ago. You were, and continue to be, such an inspiration to me and everyone who has found your website. It was...

Hello all ! It has been quite a while since I have posted anything on the forum. I have missed "talking" to everyone and reading the experiences of others. Last year was a difficult year; my husband had some major health issues and the year seemed to be gone and I had not been on the forum...

I checked the options regarding B12 and found none which apply to me. My Internist (before I knew I had OT), was trying multiple things to help; he tried B12 on a regular basis. When blood work was done some months later, it was found my B12 was much too high, so he stopped the procedure. I hope thi...

Hello Sue, I have spent the past few hours watching all the sessions from your meeting In Australia; Sue, you are to be congratulated on such a successful meeting. I realize how much time and energy goes into something of this magnitude, having seen what Peggy had to do to organize those held here i...

Hello Sue, It does sound as though your meeting was a tremendous success; job well done! I am eager to read all about the meetings and what was learned from the physicians attending; I only wish I could have been there, but living in the U.S., in Florida, it would have been a very long trip. Picture...

Hello Lorna, I have had experiences as you mentioned when standing (or sitting for you), in a line and waiting to pay for items. It is very difficult for me as I do not have a three legged stool. I have used my cane, but it is not helpful; it is to make others aware I have a problem. But....before I...

Hello Sue, Your post is excellent, and to know you will have Dr. Julian Rodrigues (now YOUR neurologist) in attendance and will be speaking to the group should be quite interesting for all. I do hope you get a positive response from Dr. Sabine Meunier, and she will also be in attendance. To have bot...

Hello all, I wanted to jump in here and add my two cents, for what it's worth! :wink: First Lorna: I have tried Lyrica, but didn't have the side effects you described; mine were swelling of my eyes and face and I felt drugged and dull....but, I am one of those people who is very sensitive to almost ...

Hello Ems..... I just read your post and wanted to at least let you know it has been read. From what you wrote, you have heard from golfnut; she has her own thread on this site with a lot of good information. You mentioned you don't want to take medication but would be open to homeopathy, acupunctur...

Hello Australia and New Zealand, This is a GREAT poster/advertisement for your upcoming meeting. It won't be long now and I am so eager to hear all about it. Did I read somewhere Dr. Russotto will be attending as well as other neutologists? If I were closer, I would try to attend; just too far away ...

Hi DiDi,

What a wonderful gesture to donate GO WITH THE FLOW a "one of a kind" sculptures with all monies going to NORD. Hopefully you will get everyone who is on this site to donate. That should raise quite a sum for our cause.

Thanks for your generous gift.

Betty