Search found 355 matches

by Betty
Tue Mar 06, 2018 2:37 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 10289

Re: Florida clinical trial

Hello all, I have read with great interest all the postings of the FL Clinical Trial. I, too, live in FL, and did try to participate in the trial but was not acceptable due to age. I was so elated as I read the post from Warren, but as time went on, you digressed back to where you were before the tr...
by Betty
Sun Sep 10, 2017 11:52 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Hello from Florida! I thought I would update you on what is happening as Irma comes ashore here in Florida. It is coming up the west coast and we live on the east coast in Melbourne ~ near Cocoa Beach. We thought it would come up the east coast or the middle of he state, but it moved west and now th...
by Betty
Sun Aug 27, 2017 2:25 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Hello all, I have had OT approximately 23 years, but that is when I first noticed tiring when standing. That was in 1994. I feel it started a couple of years before that. When it first started, I could stand an unlimited amount of time, but would feel tired and begin to feel weak. After a few years,...
by Betty
Tue Aug 01, 2017 2:24 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Balance problems
Replies: 11
Views: 1449

Re: Balance problems

Hi everyone, Thought I would jump in here regarding balance problems; I have them as well.....but I also have vertigo. However, I have had that all my life and it is just part of me. I know the difference between the two. Regarding falling; I have fallen twice in the past year. :o The first time had...
by Betty
Tue Aug 01, 2017 1:31 pm
Forum: How to use the forum, solutions and tips
Topic: New Technology
Replies: 3
Views: 3505

Re: New Technology

Hi Bonnie, Sorry it has taken me a few days to get back to you. I had forgotten about the link I posted on the forum; it has been a few years ago. I don't know if it is being used at this point. Where in CA do you live? I was so sorry to hear about your diagnosis of OT and then, with Parkinson's. Di...
by Betty
Sun Apr 30, 2017 10:16 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 10289

Re: Florida clinical trial

Hello everyone, When I heard of the trials to be held at the U of F; I got all the information I could, because I live about 2 1/2 hours drive from Gainesville. When I got more information, I found I did not qualify for the trials due to age. I was disappointed because Dr. Torres has me in his trial...
by Betty
Fri Feb 24, 2017 4:08 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 6058

Re: 2017 September OT Meeting/Research

Hi Mike and Peggy,

Good question, Mike.

Peggy this timeline does help, and appears it would be sufficient time to make plans.

Thanks,
Betty
by Betty
Mon Feb 20, 2017 3:54 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Hello Alibaba, So nice to hear from you, but sorry to hear you are in the same position as I; very difficult to walk now. I can get around in the house, using walls for stability (wall walking as I say), and using furniture for balance as well. How long have you had OT? I have had it for about 24 ye...
by Betty
Sun Feb 19, 2017 1:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Hello Gloria, I thought I would try to give an update on how I get through my days with OT. It is not easy, but life isn't always easy. We do what we can and try not to dwell on the things we are no longer able to do. My standing time is seconds to nil. My legs are weak and I have great difficulty w...
by Betty
Fri Jan 20, 2017 2:34 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Dear Gloria, Yes, we have been friends for many, many years now, and you are correct, I seem to be different in many ways. My legs don't react as most with OT, and I know I have OT after being diagnosed by Dr. Pullman. He gave me all my records and charts. However, my legs seem to have a mind of the...
by Betty
Thu Jan 19, 2017 4:19 pm
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 6058

Re: 2017 September OT Meeting/Research

Hi Peggy, I have one question; in your information note you wrote: "If you know at this point that you are definitely planning on attending regardless of whether you are accepted into the research, you can advise your contact person of this." Since I was accepted for the last research study program,...
by Betty
Thu Jan 19, 2017 12:03 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 92348

Re: How is everyone?

Hello! This is for Gloria, Fiona, Lynette and Nancy; I am a little late responding to your comments regarding the temperature you feel most comfortable sleeping. I guess I am STILL the 'odd one out'! :roll: I seem to be opposite to all of you; I must have my legs (from knees down to feet) covered an...
by Betty
Thu Jan 19, 2017 11:39 am
Forum: 2017 Omaha OT Meeting and Research - Dr Torres
Topic: 2017 September OT Meeting/Research
Replies: 22
Views: 6058

Re: 2017 September OT Meeting/Research

The poster DOES look great! It certainly catches ones attention ~ that's what we want. The more people who see it and question, "What is OT?", the better for us. My husband, Paul, and I plan to attend the meeting/research in Omaha in September, and I look forward to seeing everyone again. I will eag...
by Betty
Sat Aug 27, 2016 3:14 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 3604

Re: Standing Time? this is how long I can stand...

Dear Gloria, You were the very first person I met who had OT. When we met, I think it was about 2003 or 2004; and the rest is history. Yes, you are right, even back then, my walking was different from most; it still is. Neurologist don't know why. I found your website and thought I 'had struck gold'...
by Betty
Tue Aug 23, 2016 4:08 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 3604

Re: Standing Time? this is how long I can stand...

Hello all..... It has been a looooong time since I have posted anything on the forum. I thought it was time I started again. I saw this post from Gloria and thought I would add my comments. I have had OT about 22 years, diagnosed in 2003 by Dr. Seth Pullman in NYC. I also have a limited standing tim...

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