Search found 22 matches

by irish4411
Wed Oct 18, 2023 8:01 pm
Forum: OT- POLL
Topic: OT and Gastroparesis
Replies: 0
Views: 6619

OT and Gastroparesis

Hi everyone, It's been awhile. I have been seeing a movement specialist at Jefferson Hospital In Philadelphia. He sure does like to load on the meds. I'm not sure he has a full understanding of our situation. I have a question for the group, has anyone else been diagnosed with gastroparesis along wi...
by irish4411
Mon Oct 03, 2016 10:40 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 9843

Re: Standing Time? this is how long I can stand...

While I find I can stand for only a short time. I try to find something for support such as a wall or post. A newer (and very disturbing) development for me has been when I'm standing, I can't lift my feet. For example, at my son's wedding, we were having the mother son dance (I was dreading) and I ...
by irish4411
Sat Sep 24, 2016 9:38 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 9843

Re: Standing Time? this is how long I can stand...

I can stand for about 30 seconds before I must find something to hold onto or sit down. My condition is further complicated by orthostatic hypotension. My doctor has not been able to figure out why my blood pressure bottoms out when I stand up. I get super lightheaded the longer I'm on my feet. I pa...
by irish4411
Fri Sep 23, 2016 1:31 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Standing Time? this is how long I can stand...
Replies: 36
Views: 9843

Re: Standing Time? this is how long I can stand...

I have had OT for about 15 years, diagnosed in 2008. I find my standing time has been rapidly decreasing. I'm especially wobbly if I have been sitting for a long period of time. My sons wedding is coming up Oct. 1, wish m :shock: e luck. I'm already having anxiety about being able to do the "mo...
by irish4411
Thu Aug 18, 2016 2:38 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194500

Re: How is everyone?

Thanks Gloria for the input. My daughter used to work for the University of Penn. I see there are a few neurologists that specialize in movement disorders. I think I will wait util the fall and give one of them a try. You are right about the progression of symptoms, even a trip to the grocery store ...
by irish4411
Mon Aug 15, 2016 1:16 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194500

Re: How is everyone?

Hi, it's been awhile since I posted.

I have now moved from Las Vegas to Cape May, NJ. Don't know why but it seems my symptoms have really become more difficult than ever.

I will be looking for a neurologist within a reasonable distance from my area. Any suggestions?
by irish4411
Sat Aug 29, 2015 1:50 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: OT and working
Replies: 12
Views: 6111

Re: OT and working

I also was I your difficult situation. I was working in a job that required me to stand all day which we all know is all but impossible to do. I went on vacation and was not able to return. That was June 2014. I went on a leave of absence hoping to return to work but I hired an attorney to fill out ...
by irish4411
Thu Jun 12, 2014 10:54 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Is anyone still employed full time?
Replies: 7
Views: 3645

Re: Is anyone still employed full time?

I really do like my job and wanted to work 2 more years. My husband and I are planning to come back to NJ in 2016 when my husband is 66. I'm thinking I may have to apply for SS disability if the new meds don't work out. Saw my Dr. yesterday, he gave me 1 month LOA to give the meds a chance to work. ...
by irish4411
Wed Jun 11, 2014 2:01 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Is anyone still employed full time?
Replies: 7
Views: 3645

Is anyone still employed full time?

I'm still working full time in a very challenging job that requires me to on my feet for 8 hours but also requires me to have a clear head as well. I found that clonazapan was clouding my judgement and also interfering with the quality of my life at home, so the doctor has been slowly taking me off ...
by irish4411
Wed Mar 12, 2014 12:36 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: I have a question???? Social Security Disability Benefits
Replies: 11
Views: 5004

Re: I have a question???? Social Security Disability Benefit

Rhonda, That was very helpful advice. I think you pinpointed what I am feeling. A sense of nothing really matters, I suppose you could call that depression. I have been wanting to stop taking the meds because of the side effects but I have been just been trying to struggle through to get to at least...
by irish4411
Thu Feb 27, 2014 11:09 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: I have a question???? Social Security Disability Benefits
Replies: 11
Views: 5004

Re: I have a question???? Social Security Disability Benefit

Thank you for your support so far. I find with the clonazapan, even on the lower dose, I lose who I am. I think most of you know what I mean by that. I small pay off is not worth having no emotions, no feelings, basically going through life in a cloud. My husband often says he wants his wife back. I...
by irish4411
Wed Feb 26, 2014 1:55 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: I have a question???? Social Security Disability Benefits
Replies: 11
Views: 5004

I have a question???? Social Security Disability Benefits

Hello everyone, It's been awhile since I've touched base. I have been working full time 40 hours per week on my feet, taking 4mg of clonazepam. I have it pretty well timed so that it doesn't have too much of an effect on my thinking by the time I go to work. Now, since the New Year has come around, ...
by irish4411
Thu May 26, 2011 3:16 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Stiffness
Replies: 13
Views: 4892

Stiffness

I have had OT for about 10 years but was officialy diagnosed 3 years ago at UCLA. Currently my doctor has me on klonapin 3mg along with (topamax 200mg and depakote 500mg for migraine prevention) all before bedtime. I find after a few hours of sleep, I literally can't turn over . My muscles are so pa...
by irish4411
Thu Nov 20, 2008 9:51 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194500

Re: How is everyone?

It's been awhile since I posted. Just bought a house and have been getting settled. Here is the issue. Got into a pretty serious car accident. Was sitting at a stop sign and got hit by a car coming from my left. My car (a chevy Tahoe) was totaled. Front end comletely destroyed. Now, my right knee is...
by irish4411
Wed Aug 27, 2008 10:58 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194500

Re: How is everyone?

When I work, I'm on my feet and doing a lot of walking, by the end of the day, my legs ache terribly. Once I sit down, I find I'm very stiff and sore when I try to get up. You would think since I do this 5 days a week, my muscles would get used to it, but it's as if my muscles have no memory. (if th...