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by gloria
Wed Aug 01, 2018 11:52 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Communication
Replies: 4
Views: 960

Re: Communication

Theresann: Yes environmental heat especially humid weather does make our tremors feel worse and your neurologist is correct there are no meds that work. Gloria
by gloria
Sun Apr 15, 2018 5:51 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: " long term condition"
Replies: 1
Views: 760

Re: " long term condition"

Hi ! Linda : OT is progressive with time however 14 years is a short period of time for you to have reached the standing time you are in at the present however it might be because your OT started at an older age. In answer to your question perhaps you need to ask your community town office about you...
by gloria
Wed Mar 21, 2018 11:52 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Jean: Welcome to the forum and the life that you have experienced with OT and it's progressive nature. Because there is no medication to help us the only thing we can do is to find coping skills to ease the way through our lives and support research. Gloria
by gloria
Mon Mar 12, 2018 4:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Rose: Welcome to the website and I hope it will help you understand life with OT . OT is progressive and wonder when you first started with your symptoms and how long were you able to stand still before you felt the need to start walking or sit down? The onset average is unlimited for walking but st...
by gloria
Sun Feb 11, 2018 5:13 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Your experiences with OT Medications
Replies: 27
Views: 11951

Re: Your experiences with OT Medications

Laura: I'm sorry to say OT is a progressive neurological movement disorder and our standing time continues to be less with time and there is no medication that will stop it. The only thing that helps is to find coping skills to do whatever things we can do with our limited standing time. Walking at ...
by gloria
Sun Feb 11, 2018 4:18 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Nin: Perhaps you should consult with your neurologist that diagnosed your OT for a opinion of
the situation you are faced with at the present . Perhaps that will help calm the anxiety you are feeling . All the best, Gloria
by gloria
Sun Feb 04, 2018 6:04 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Mark: It is strange that I feel I've have heard from a Mark before stating the same queries about OT......my answer is the same with a beginning question of how you were diagnosed by your neurologist? With the diagnosing of OT an EMG is used to determine the Hz-Hertz frequency per second ........the...
by gloria
Sat Jan 06, 2018 3:30 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Terry: There is no medication that will ease the symptoms of OT because it is a progressive neurological movement disorder. The only thing that we can do is find helpful coping skills to ease the way , it will not stop the progress of OT which is a slow going progression over the years starting with...
by gloria
Wed Dec 13, 2017 12:43 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Florida clinical trial
Replies: 62
Views: 9980

Re: Florida clinical trial

Warren: Thank-you for the continued 10 month status reporting of your slowly regressed stimulation therapy however hopefully repeating the stimulation again will start you on another 10 month session of some OT relief. Please continue to report the results as you did the first time. Thanks, Gloria
by gloria
Sat Dec 09, 2017 4:40 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Performing tasks above head
Replies: 2
Views: 553

Re: Performing tasks above head

Hi ! All: Reaching and doing tasks over the head is a very difficult part of our OT disorder, try not to do it you might lose your balance. Gloria
by gloria
Mon Dec 04, 2017 8:31 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Hot Rod: OT is a progressive disorder we generally start in the beginning with OT standing still time as much as 15 minutes and as our OT symptoms progress in years our standing time will slowly lessen from those minutes to seconds , this is normal progression with OT. Walking at a steady pace witho...
by gloria
Sun Dec 03, 2017 4:08 pm
Forum: OT- "THINGS" that help
Topic: Recumbent bikes
Replies: 1
Views: 641

Recumbent bikes

Hi ! OT friends: I have a recumbent bike in my home designed for easy capability to provide an effective workout for strenghting my leg muscles while sitting down . I generally workout with it for about 10 or 15 minutes, I can almost feel the muscles being to work on. It is worth the investment of o...
by gloria
Sun Nov 19, 2017 4:46 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 998
Views: 119064

Re: New to the forum? post a quick introduction

Hello Soheila : Thank you for posting your experience of being diagnosed with OT and your everyday life with your symptoms. OT is progressive and what you are describing as your lessening of your standing is to be expected with time. Gloria
by gloria
Sat Nov 18, 2017 8:36 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: "Participate in a support group"
Replies: 16
Views: 9221

Re: "Participate in a support group"

Welcome Linda: Why are you certain that there is no other person where you are? Were you just diagnosed with OT and have you asked your neurologist about someone near you that you can contact ? I'm sorry too that you just missed a large research & meeting in Omaha,Nebraska. You have not given your l...
by gloria
Sat Nov 18, 2017 4:44 pm
Forum: OT- "THINGS" that help
Topic: Dark Chocolate
Replies: 0
Views: 549

Dark Chocolate

Hi ! All: Here is something that you might find delightfully interesting that the health benefits of dark chocolate is one of the best scources of antioxidants we have on this earth . I use 75% Cacao Dark Chocolate bars. As I read further it has more antioxidants then most foods we eat too. All the ...

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