Search found 19 matches

by Harriet
Wed Dec 22, 2010 9:16 pm
Forum: OT- "THINGS" that help
Topic: Where is everyone? How is every one?
Replies: 3
Views: 2726

Where is everyone? How is every one?

It's been a long time since anyone posted. It would be great to hear how you're all doing. Me? On a scale of 1 to 100 on some days I'm at a 1 and some on others I'm closer to 100. Never tremor free of course and never able to stand without holding on to or leaning against something, but sometimes be...
by Harriet
Wed Dec 08, 2010 9:35 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Baclofen
Replies: 6
Views: 3382

Re: Baclofen

I too have been taking neurontin/gabapentin for many years and find that it helps a little. I'm still experimenting with how much to take and at what intervals. I don't think it affects my cognitive functioning but it does sometimes affect my mood--for the better. Sometimes I find myself feeling ine...
by Harriet
Fri Nov 19, 2010 9:51 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: DRUG CLONAZEPAM
Replies: 23
Views: 12133

Re: DRUG CLONAZEPAM

Hi Lynne, I have been taking gabapentin for many years and find that it helps moderately. With it I have occasional, very welcome, moments of steadiness. I take 200 mg at a time--3 or 4 times a day--quite a low dose. The strange thing about it is that I feel most steady after my second dose of 200 m...
by Harriet
Mon May 31, 2010 11:57 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: My brilliant discovery
Replies: 0
Views: 2996

My brilliant discovery

In the 30 + years that I have had OT, washing my hair has posed a problem. Standing in the shower became increasingly difficult, now impossible. I had a seat and hand held shower installed in my stall shower; it was very uncomfortable with the water constantly spraying into my face. So then I washed...
by Harriet
Thu Oct 16, 2008 6:44 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: New to the forum? post a quick introduction
Replies: 1015
Views: 240961

Re: New to the forum? post a quick introduction

Hi In response to your question about how bad does it get, everyone is different and has a different experience. But I have had OT for about 30 years (for the first 20, like you, thinking it was an anxiety disorder), and I do not think my condition has gotten especially worse. It was dreadful at the...
by Harriet
Thu Aug 28, 2008 5:35 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Trouble kneeling?
Replies: 7
Views: 4740

Re: Trouble kneeling?

Hi Lynda, After I read your post, I got down on my knees, and -- yup--I felt just as shaky and unsteady as when standing. When I sit unsupported on a chair, I also feel shaky; I need to be able to lean back. I guess like many of you I'm most comfortable lying down and do a lot of activities in that ...
by Harriet
Sun Aug 24, 2008 10:45 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Gabapentin
Replies: 0
Views: 2830

Gabapentin

Hi, Thought I'd weigh in on gabapentin. I've taken it for 13 years, first in combination with clonazepam which made me sleepy. After a minor fender bender I decided I needed to be more alert and discontinued the clonazepam. I take 400-600mg a day. If I try to go higher I feel headachy and unable to ...
by Harriet
Fri Aug 01, 2008 8:18 pm
Forum: OT- "THINGS" that help
Topic: post your product reviews here.....
Replies: 39
Views: 19287

Re: post your product reviews here.....

Hi, A shopping cart with a fold down seat seems like a great idea. I saw another one on the Active and Able website for $49 and will probably order it (to add to my collection of cane seats, sports seats etc.) I could not figure out how to create a link to the site, but it is easy to find through on...
by Harriet
Thu Jul 24, 2008 8:07 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194172

Re: How is everyone?

Hi again, This is to report my success at the 99 cent store! This time there were only 4 or 5 people in line and I was able to get to the check out counter before panic set in. I felt that the sense of support from so many people experiencing just what I do helped me to go back and get through. (How...
by Harriet
Thu Jul 24, 2008 5:47 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: How is everyone?
Replies: 719
Views: 194172

Re: How is everyone?

Hi all, I too like the idea of sharing our daily trials and tribulations. I loved your story about the eggs, Joan. I laugh when I think about it. I am at present about to go to a local 99 cent store. I went there a couple of days ago, saw that there were only one or two people in line at the cash re...
by Harriet
Mon May 05, 2008 4:16 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: OT sufferer in South Africa... Questions
Replies: 3
Views: 2834

Re: OT sufferer in South Africa... Questions

Hi Tan, Welcome to the Forum! I've had OT for 33 years--unbelievable!--and am still struggling to find ways to cope. But I'm certainly doing a whole lot better than when it all started. Like you, I often have extreme shakiness when I have to stand in a line--or on a ladder--or walk in the dark--or w...
by Harriet
Sun Apr 27, 2008 9:27 am
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Do any of you have phobias?
Replies: 2
Views: 2122

Re: Do any of you have phobias?

Hi Joan, I have enjoyed your posts. I not only have a phobia about being a passenger in a car but I'm a therapist who specializes in phobias. Which came about from thinking I was suffering from a social phobia when I first noticed the symptoms of OT. When we moved to a new neighborhood in 1975, I wa...
by Harriet
Tue Apr 08, 2008 2:03 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: A little help needed
Replies: 6
Views: 2929

Re: A little help needed

Hi Richard, Yes! I do find that I am more stable if I stand on one leg--(holding on to something of course--without leaning or touching something I cannot stand on one OR two legs.) Whenever I'm at a checkout counter, bank or whatever I always lean on the counter and stand on one leg. I was going to...
by Harriet
Fri May 25, 2007 6:29 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Lyrica and Topic "Help is here!!"
Replies: 4
Views: 3356

Hi Petra, I tried Lyrica and did experience side effects. I felt very "out of it" and headachy so that I did not continue. It gave me some feeling of steadiness but no more than I had been getting with Gabapentin which I had been taking only on an "as needed" basis. (When going i...
by Harriet
Sat Jul 22, 2006 7:14 pm
Forum: OT- DISCUSSION, Questions, Thoughts and Advice.
Topic: Life style with OT
Replies: 7
Views: 5244

Hi Richard, Visualization is related to the mind/body approach and can be part of a lot of different, but related methods including hypnosis, relaxation, meditation, a lot of "energy" techniques, etc. In order to use visualization, you don't have to know the cause of the illness or to be a...